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JOANIEGRL1, February 23,  2021  7:04am EST


I have an appointment on Thursday with a Cardiologist to find out what the game plan is. I have multiple valve leakage, heart murmur, AFIB and Pulmonary hypertension. I always had Mytral valve prolapse and a heart murmur. Just recently found out a doctor knew about the rest but never told me. I have symptoms. I am scared and anxious. I tried talking to family about how I feel they keep saying I will be fine. I am a cregiver for my brother. He has end-stage heart failure and has an LVAD. He is able to do a lot for himself.  But refuses to take care of himself. I stopped a lot of what i was doing for him. My anxiety is so bad that I am not sleeping, I am irritable because no one seems to care, I am afraid of the unknown. I know sometime down the road I will need my aortic valve operated on. I have moderate Aortic Stenosis. I just feel alone.

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  • AHAModerator
    AHAModerator, February 23,  2021  9:06am EST

    Hi there,

    Thank you for joining the support network and sharing your story. I'm so sorry that you're going through this experience but it's good to hear you're now receiving adequate care. I want you to know that you are not alone. I hope that you can find a sense of community and solidarity among others here in the support network.

    I can share with you stories from AHA Ambassadors who live with Heart Disease. I hope their stories will help you feel less isolated in your experience. Please keep us updated on how you're feeling, we're rooting for you!

    Best Wishes,

    AHA Moderator

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