AHAASAKatie
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AHAASAKatie, October 8,  2018  8:58am EST
heart pumpkin.jpg (1).

RIP-Just Checking In?

Good morning, I was thinking about you over the weekend and realized we have not heard from you this fall. Please check in and let us know how you are doing. Best Katie 

  • RIP12
    RIP12, October 25,  2018  3:25pm EST

    Hi Katie, sorry I have been off  grid for  while, I have been in  hospital most of time to stablize my heart. My doctors have EF up to 35%, but the new drugs  they have me on makes hard for me to communicate thoughts. With EF up I now don't qualify for transplant list and now insurance company will not approve  cancer treatments. Will try to keep updated best I can.

    Bob Repine

  • AHAASAKatie
    AHAASAKatie, October 25,  2018  3:51pm EST

    I am so glad to here from you and so sorry that insurance is challenging! We have a few resources that might be able to help you navigate the insurance company if it helps at all.  Patient Advocate Network and Patient Advocate Foundation. Please let me know if you need anything else. Best Katie 

  • RIP12
    RIP12, November 26,  2018  4:58pm EST

    Thank you Katie, have a lot of people working for me. Just got out of the hospital had problems with kidneys but OK now. Did heart cath and pressure on right side was lower than left will have full cath in Feb. how damage is progressing and to see if we can try for radiation come spring. Some time I wonder if all worth it. Not getting any younger. Wife won' let me quit so I keep on going.

    Bob Repine

  • AHAASAKatie
    AHAASAKatie, November 27,  2018  4:46pm EST

    Thank you for letting us know how you are faring. Please know you and your wife are in our prayers. This must be just awful. Best Katie

  • RIP12
    RIP12, January 24,  2019  7:23pm EST

    I accept that I am dieing and that it will take at least 3 years if not more to get on the transplant list.  It is hard for me to deal with how people treat me.  Most avoid me and others pitty me.  I just don't know how to get these people to not feel sorry for me without hurting their feelings.

    Bob

  • AHAASAKatie
    AHAASAKatie, January 24,  2019  8:21pm EST

    I want you to know how much strength I see in your acceptance of what is happening. I also want to say that I think people reason and work out how they react to illness and death in their own way, and I am not really sure that you can impact what other people are doing, saying and feeling. I do not have sage words of advice at this stage, but I can offer friendship and support to you and your wife. If I can help in any way please let me know. Peace, Katie

  • JamesPL
    JamesPL, January 24,  2019  8:51pm EST

    RIP12,

    I'd like to echo Katie's words in that you are very strong in accepting your perceived fate. But I would hope you can also find the strength to keep fighting as your wife wants you to. It's easy for someone like me to say that, I understand. But please don't ever give up.

    My thoughts are with you.

    Jim

  • AmbassadorMR
    AmbassadorMR, January 25,  2019  9:17am EST

    Bob,

    I too can only offer my support to you from afar. You and your wife are dealing the most important challenge that all of us face eventually and that is our own mortality. You are accepting your situation with courage and grace from all that I can surmise. I wish you all the strength and resolve that I can muster as you work your way through your treatment, insurance and waiting list maze. You are a brave man and I hope for nothing but the best for both you and your wife as you deal with all of this.

    With Heart,

    AmbassadorMR

  • JeffB
    JeffB, January 25,  2019  11:30am EST

    Bob,

    I have missed hearing you chime in on the Support Network too. I told Katie that you are one of the guys whom I look up to on this board as a younger heart attack survivor with, hopefully, a long fight with CAD ahead. It’s people like you who give me hope to carry on through the fear of something else going wrong. Not in what you have gone through and all you have survived but your damn bare-knuckle strength to embrace change, disease and age. I hope that when it’s my turn to face something like this that I have as much resolve and emotional elasticity as you do.

    No magic wands here, or pity, just another brother who is here to say you are important to me.

    I will be thinking of you and wishing you a more positive set of circumstances – even if by some stupid random miracle.

    All my best man,

    Jeff

  • RIP12
    RIP12, January 25,  2019  7:59pm EST

    Thanks everyone, growing up a military brat helped me accept death at  an early age since I watched a lot of people die. I know Ican't change what ever happens but as my grandmother use to say was she wouldn't give up until they put the first nail in her coffin.It just gets lonely a lot of the time. I will try to get back on the message board as soon as I can getmy meds and my head to work togrther.I just want to be sure I use the right words when giving advice.

    Bob

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