tmganu123
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tmganu123, February 6,  2020  6:10pm EST

What's next?

Hello brave warriors!

My mom, who I think is in end stage CHF, was just told by her cardiologist that there is nothing more they can do for her.  She is currently in the hospital and is about to be discharged to my sister's home (where she lives) only adding home oxygen.  In addition to CHF, she has diabetes, COPD (only about 35% lung function), still smokes and is not a candidate for any type of surgery (per Cardiologist and Pulmonologist).  The docs cannot even adjust meds or add any meds at this point.  My sister and I don't really know what to do next?  Obviously, she is going home but, we don't know what to do?  Does anyone have any advice?  Should we get home health? Hospice?  If not, when would we or what would warrant these services?  

This may go without saying but, please don't say anything negative about her still smoking....that is not even an issue for us at this point.  I love her and want to make sure we are doing everything we can for her as she is a brave warrior too.

 

Thank you so much for any insight or advice you can offer.

 

2 Replies
  • Jharad
    Jharad, February 7,  2020  10:37am EST

    I'm sorry to hear about your Mom.

    If your hospital has a social worker of some kind, or discharge coordinator, you might want to talk to them. If she is in end stage heart failure, and you want her at home, you're looking at hospice care. That will usually bring nursing care, respite care, pain relief medications and so on into the picture. But you'll want to check what her insurance covers.

    Again, I'm sorry. It's hard facing the death of a parent.

  • JamesPL
    JamesPL, February 7,  2020  11:54pm EST

    I am so very sorry about your mom's diagnosis. I can only echo what jharad has said. I would consult with any and all healthcare professionals that know her condition and if hospice care is necessary, I wouldn't hesitate. When my dad was terminally ill, my siblings and I all pitched in to care for him. It took its toll on all of us to the point of some real tension between us. It was a very difficult time and I think hospice care would have benefited all of us including my father. 

    I wish you and your family all the best.

    Jim

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