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LindaNolin, April 12,  2021  1:17pm EST

Weak Heart

I had a heart attack 3 years ago and have shorness of breath off and on especially in cold weather. On my last doctor appointment I had an echocardeogram and my heart doctor is saying I may need a defibrillator in the futurebecause I have a weak heart. One person I know that has one said it brought them to there knees and had a panic attack and ended up in the hospital. So I'm wondering if anyone has one and what is the good bad or **** stories about one. Thanks

4 Replies
  • AHAModerator
    AHAModerator, April 12,  2021  5:15pm EST

    Good afternoon,

    Thank you for sharing your story with the support network. As you wait to hear from others about their experiences with defibrillators I can share some resources on Living with Heart Failure. Please keep us updated on how you're doing!


    AHA Moderator

  • JamesPL
    JamesPL, April 12,  2021  6:51pm EST

    I have not personally had one but a very close friend of mine has and he is forever grateful for what has become a lifesaver for him. He will often tell the story of how he "died" in the OR. I think it's become his badge of honor. He has had it for many years and it has activated on rare occasion. Again, he is grateful for having it.

    Wishing you well!


  • tryingmybest
    tryingmybest, April 13,  2021  10:24am EST

    My father had one for many many years before he passed. It was nerve wrecking in the beginning because you don't know what to expect or if it'll go off or how often and all of those questions BUT it saved his life once. And that was the only time it ever went off. They've also come a long way in recent years - even hooking up to your wifi so it can send information to your doctor's office. That's also a benefit.

  • jerzeycate
    jerzeycate, April 13,  2021  12:28pm EST
    —Pngtree—hand painted background umbrella petal_4104498.jpg.
    I have had a Quadripolar S CRT-D since July of 2013. At that point my EF was 11%, They had gven me 3 months to live. I had made it 6 months only because I lived in the hospital during that time. The device was implanted and, after being unable to get out of bed without assistance for several months, I walked out of the hospital on my own feet 48 hours later. Within 6 months my EF was at 30%. Within 18 months it reached 55% where it remains to this day.
    The device literally keeps my heart beating.
    The defibrillator, which is part of any of today's complex cardiac devices, has engaged several times. These new fangled guys are much kinder and while I knew it went off, I was not brought to my knees or thrown across a room as you will see if you watch you tube videos.
    My advice is that if your medical team feels it will benefit you and protect you from Sudden Cardiac Arrest then you should follow their advice. Our doctors study long and hard to attain their positions, and assess our cardiac function throughly before make such recommendations. Today's devices not only protect you if your heart develops a severe arrythmia or SCA, they also work to improve your heart function.
    Be well.
    Be Brave.
    We are here for you.

    It's A Great Day To Be Alive...

    Cathy (aka JerzeyCate)

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