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hammerdown, February 9,  2019  6:28pm EST

Wax and Wane

From my current research, it appears heart failure can wax and wane over time.  I'm recovering from a pneumonia event that struck 3 weeks or so ago. Lethargy, SOB, and other symptoms were common.  Yesterday, 1 mi on the treadmil, then 1 miles on the recumbent bike (took 1hr. 20 min to complete) and I was pooped. Today, I felt must better - 2 - miles on the 'mill and 5000 steps on the newstep.  Spent 1.5 hours doing so.  I recall early in 2018, the edema in my ankles/low legs was huge. No other symptoms - back then I could treadmill 3 miles, then 2 miles on a walking path. My compression socks would swell up from the fluid accumulation and the area above the socks  was hugely swollen in its own right.  I saw no Doc, and this symptom eventually dissappeared within 2 - 3 months.

5 Replies
  • JamesPL
    JamesPL, February 9,  2019  11:20pm EST

    Recovery can be like that. In fact, life can be like that. I have had days when nothing is working for me and feeling so lethargic that I've become concerned. Then I'm fine the next day. Sometimes I've struggled through workouts and other times I'm flying and have no idea where it's coming from. If we generally feel good far more often than not, we're on the right track especially if we are active. Those down days can be concerning at times. I once asked my doctor about it after having one of those very lethargic days. He simply replied "some days you just feel like s**t". 

    At any rate, keep your activity level up!


  • AHAASAKatie
    AHAASAKatie, February 11,  2019  9:48am EST

    Good morning, Heart Failure is definitely a condition that changes quickly and requires careful management. We have quite a few tools and resources that can help you with this including an HF Path app if that interests you. Thank you so much for sharing what is on your mind with us. Best Katie 

  • hammerdown
    hammerdown, February 13,  2019  11:04am EST

    An anecdote: I had my pacemaker "optimized" yesterday. Doc claimed at least a 10 - 20% EF increase.  That'll put me at around 35% EF. Later in the day, 2 miles treadmill, 4 miles recumbent bike.  Slept solid last night with just two - instead of five - urinary breaks. I was expecting the bathroom scales to show a  2 lb. or more weight gain this AM. Nope! Same as yeasterday: 172Lbs. My "Pacemaker Club" postings where I extoll the virtues of pacemaker optimization, the other participants seem oblivious to the procedure.


  • JoeSzzz
    JoeSzzz, February 15,  2019  5:49pm EST

         I have had heart failure for the past 10-15 years. I take massive amounts of ubiquinol. I have been good for the past  10 -15 years - eventhough I have had "events" that would scare anyone. I used to go to the ER. I would run up big bills. I no longer do that after taking 1 gram of ubiquinol every 30 minutes until about 2 bottles are gone. This has been great! I still lift weights and excercise, with very little shortness of breath and ankle swelling comes and goes. How ever I am now treating the underlying problem....age. Your body is just wearing out! I have now - just last week - starting to take HGH to repair my heart and other organs. HGH reaches it's peak when you are in your 20s. You have to be careful, because as you age, you can grow some "bad stuff" in your body. When your body was young, you had young materials and very few defects, as you get older, drinking, bad eating, pollution, other harmful agents , take a toll on your body. So you have to be careful while taking HGH. HGH is mostly offered to the affluent class because they have the money to pay for the high price of HGH. You might be able to get it through your insurance company. The stuff used to be cheap....a long time ago. Massive amounts of ubiquinol and HGH. I hope this helps!

  • AHAASAKatie
    AHAASAKatie, February 18,  2019  3:44pm EST

    Good afternoon, I wanted to share this article Expert Sounds the Alarm on Medical Misinformation . There is a place for supplements in recovery, however it is very important that you talk with your doctor before begining any new treatment plan. Thank you Katie

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