SJJ89
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SJJ89, April 7,  2021  6:54pm EST

Support, low EF, uncertain of future

Good day, 

I joined the support network hoping to find answers and get some support. A bit of background- unfortunately some of the details are scanty as I live abroad so much of what I know is hear-say and through my mother's eyes who is naturally anxious about this: my dad is 68 years old. Generally had good health and recently retired. In the last 3 years he had a number of changes happen whilst preparing for retirement that were likely stressful but he seemed to handle okay. Never any serious health or heart issues other than controlled low bp and on medication for psoriasis. In June 2020 he collapsed and was taken to hospital. At the time is appeared to be afib but he was sent to another hospital to consult with a cardiologist. Sadly he contracted covid (or he had covid before who knows??!!) and I think his care was jeoprodized as it was the heat of the pandemic. Nevertheless he survived and was never really given any formal diagnosis and told to see the doctor in 6 months along with some meds and scans done. It is quite possible he had a clot at the back of his heart (if that's even possible) and was only treated with medication as they could no shock his heart as a result of this... I don't know the exact details. Anyway after discharge he could barely walk and had physio and took meds as prescribed. He did really well until a GP messed his meds and he had another admission to the hospital. Since then he has been consulting with a physician who has special interest in cardiology. I would say since January 2021 he hasn't been himself. Very easily out of breath, often in bed most days and constipated. His doctor was monitoring him and at his app in Feb seemed pleased with his progress. Round that time I believe his EF was about 35%. However in March he was readmitted for dehydration after being very constripated. I assume that it is because he has to restrict his fluid intake. At this present time he is still in hospital. His physician consulted with a specialist electrophysiologist as my dad hasn't been responding to meds as an out patient.  Their recommendation was bleak saying my dad is not a heart transplant candidate nor suitable for other types of therapies- just recently he was diagnosed as diabetic. He was taken to ICU and put on a drip of sorts to stabilize his bp (my guess is that it is some sort of inotrope). He has since been transferred to the general ward but continues to be short of breath, swollen feed and is aggressive and seems slightly delirious at times. Granted he is also not sleeping well. They were going to do a sonar of his liver. Also his treating doctor has been away and naturally my mom is scared and asked the covering doctor. He apparently has stage 4 chf with 15% ef. From what I have read online this is not good. I have tired searching this forum to see if it is possible to live with this.  I am very afraid my father will die- at one point he was telling my mom how he would like his funeral to be. I am also worried about my poor mother. My parents don't have family nearby as my sibling and I both live abroad. It is so hard being far away and only offering support by phone. I cannot return home because of the pandemic as I have a small baby. 

Needing some reassurance, if not possible direction on "what next"? 

2 Replies
  • AHAModerator
    AHAModerator, April 8,  2021  8:45am EST

    Good morning, 

    Thank you for joining the Support Network and sharing your fathers' story. We are happy you all are here. I'm so sorry to hear your family is going through all of this. I hope you find the support and sense of community you are looking for here and some advice and guidance.  As you wait for others to respond, I can provide some resources on Improving Low Ejection Fraction and Ejection Fraction

    Please keep us updated on how your father and how your mother and family are doing. 

    Best wishes, 

    AHA Moderator 

  • Becky4242
    Becky4242, April 9,  2021  4:57pm EST

    SJJ89, when I read your post I couldn't help but to hear my very own heart cry aloud. I absolutely cannot imagine how you must be feeling right now. My father who is 63 lives a mere 550 miles from me and if I were to receive this kind of horrific news about his health I would feel worlds apart from him. There's not much that I can offer you in the form of words to ease your grief and stress but I'm going to give my best shot at reminding you that your father KNOWS to infinity and beyond how much you love him! I will be sending up prayers for you and your family! Wherever you are today and whatever you are enduring emotionally please remember to take care of you, your father would want no less than the best for you and your sweet little baby. 
     

    May you find much peace 

    Becky 

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