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Desertsky490, August 14,  2019  7:10am EST

Newly diagnosed

Hello. About a month ago I was diagnosed with heart failure. I'm 37 years old. I'm just starting out with all the different testing and different doctors. The symptoms I'm experiencing are severe. I haven't yet been told what stage my heart failure is in, but from what I have been told, it's pretty bad. This is all very frightening and I'm not sure how to process everything going on. Any advice would be appreciated.  

5 Replies
  • JamesPL
    JamesPL, August 14,  2019  7:12pm EST

    Heart failure is very broad and you shouldn't let your thoughts run away from you. Eventually you'll get specifics and know how to proceed after your diagnosis. Remember that we live in a high tech world with amazing advancements in medicine and technical procedures. I am convinced that I have recovered as well as I have because of modern technology. There are also excellent therapautic treatments available. One thing you should eventually take advantage of is cardiac rehab. Physical therapists will work with you and show you exercises that will help you in your recovery by strengthening your heart. 

    Take this one day at a time and pose many, many questions to your cardiologist.

    I wish you all the best.


  • JShoemaker1
    JShoemaker1, August 14,  2019  9:39pm EST

    Our family has been through the same thing.  Diagnosis of my husband at 47. Some days are great and some are a struggle.  Keep busy and find a good Dr. There are lots of good things you can do to keep your condition under control and I had a friend who’s EF was reversed quite a bit (positive).  

  • Desertsky490
    Desertsky490, August 15,  2019  2:39am EST

    Thank you all for your supportive words. To be more specific, I have pulmonary hypertension.  Waiting to get a referal to a pulmonomary hypertension clinic. Does anyone here have any experience with one of these clinics?

  • DolphinWrite
    DolphinWrite, August 16,  2019  9:52pm EST

    All the best.  I hope you learn what you need from the doctors and recover.  😊

  • Roselane
    Roselane, August 24,  2019  9:03pm EST

    I agree with Jim, take one day at a time.  You will have your good days and bad.  I had a double bypass a year ago and then a defibrillator implanted. I get out of breath easy and take more breaks than ever, but have to keep going or I would just lay on the couch all day.  Ask lots of questions of your doctors.  Cardiac rehab really did help me.  It is good to have goals, but don't get upset if you don't complete it.  I used to clean house weekly and now I am lucky to do it monthly.  I am still trying to accept my limitations.

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