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GGG53, July 29,  2020  3:25pm EST

New to Board

I am new to this but was referred by my nurse. It is good to know I am not alone. I was diagnosed with heart failure 1 year ago in August. I have since had a mitral clip and a icd. My BNP is still over 1000. It seems like all I do is wait for the next doctor appointment. Now I may have an ulcer so more test. I have no energy but doctor won't let me go to cardiorehab yet. Is it normal to think nobody understands? Thanks for listening. I will be 70 in October by the way. 

4 Replies
  • Azartist
    Azartist, July 29,  2020  11:19pm EST

    Hello, and welcome! I'm new here as well, having been diagnosed with heart failure in April of this year. ICD procedural in a little over a week. I understand where you are coming from. I'm 59, and very low energy. Anxious to go to cardio-rehab, but I know it's just not a safe to go yet. It feels like a lot of waiting -- waiting for doctors, waiting for tests, waiting for results. But, I try and stay positive (most of the time!)... I was very lucky to survive my heart attack. Hang in there!! You're not alone.

  • AHAASAKatie
    AHAASAKatie, July 30,  2020  9:26am EST

    Welcome to the Support Network, we are so glad you are here. I know the feeling about waiting for the next doctor's appointment. It can become very draining on you. I can share the information that we have regarding Living with Heart Failure with you as sometimes extra information can help you feel more secure in what is going on. Please know that Azartist is correct, you are not alone in this. We are here with you. 

    Best Katie

  • GGG53
    GGG53, July 30,  2020  3:29pm EST

    Thank ya'll for your input. It does help to know others are out there going through the same thing. I look forward to using this board for support and to support others.

  • JamesPL
    JamesPL, July 30,  2020  8:54pm EST

    I think those who understand are the ones that have been through it. I understand your frustrations right now but hang in there. Eventually you will be able to get to cardiac rehab and it will be worth the wait. You'll greatly benefit from it so don't be too over anxious right now. Your energy level will improve once you're back on track. Until then, ask what your doctor will allow you to do. Even casual walks would help you.

    Wishing you well!


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