FEM1940
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FEM1940, February 3,  2019  10:07pm EST

NEW PARTICIPANT IN FORUM

Hi, I am a 78 year old female.  I recently recieved the results of an echocardiagram:  Left atrium severely dilated; left ventricle grade 2, moderate diasystolic dysfunction c/w impaired relaxation, EF is 58%.  I have yet to see a cardiologist because I couldn't get an appointment until mid-March.  I can read WebMD, however, so I know I am in trouble.  I have already started a weight loss diet and the doctor (a pulmonary doc who oversees my use of a CPAP (breathing) machine) who noticed my hypoxemia (low blood oxygen) and ordered the echocardigram put me on oxygen at home.  I was reluctant but have to admit that I do feel a little more energetic.  Sorry if that is too much info, but I am  trying to become familiar with all the lingo.  I have read a few of the posts here and am shocked to find that everyone seems to be so young . I have the usual complaints that others have mentioned, especially fatigue.  I chalked up most of my symptoms to "getting old."  Also, I have fibromyalgia, scoliosis and neuropathy, so I have had chronic pain, fatigue, and difficulty walking for the last 3 or 4 years.  I became too accustomed to not feeling good and didn't pay enough attention to my body.  I would really like to hear from someone in their 70s or 80s.

7 Replies
  • AHAASAKatie
    AHAASAKatie, February 4,  2019  9:11am EST
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    Good morning and welcome to the Support Network! Thank you for sharing what has happened in your world and for letting us know how you are doing. I can share the information we have on cardiomyopathy with you. I hate that you have to wait so long for your first appointment. Is there any way to see another doctor or do you have to been seen by this specific person? Thanks Katie

  • NurseTessa
    NurseTessa, February 4,  2019  2:35pm EST

    Hi there, 

    Just a note of encouragement that an EF of 58% for someone your age is excellent. Normal EF is >50%. The other findings on your echo combined with your symptoms suggest that there are some medications that could be helpful in controlling your symptoms and slowing the progression of your heart disease. Please be careful with "Dr. Google" it's very easy to awfulize what you read and assume that you are the worse case scenario. Perhaps you could call the office and see if they have a Nurse Practitioner you would see earlier than the doctor.

    Be well,

    T

  • AmbassadorB
    AmbassadorB, February 4,  2019  8:05pm EST

    FEM1940,

    As an octogenarian, who has had several experiences in the heart maintenance and repair world, I am happy to comment on your Forum message.  Two things immediately come to mind:  (1) I completely agree and endorse Katies thoughts about getting prompt attention from a Cardiologist.   A positive plan, with timely action to move you into a healthy, optimistic  status should be top priority for you.  Chronic pain and fatigue are conditions to be eliminated - quickly!    (2)  I recommend your participation in a regular, professionally administered physical activity program.   There are several available - on a national scale that minimize the cost to us -  seniors.  The conditions that need to be strengthened or changed are identified and exercises employed to get the desired results.   The results and benefits of this activity will amaze you. 

    Don't accept delay nor a "wobbly" plan!

    Ambassador B  

     

  • FEM1940
    FEM1940, February 6,  2019  9:46pm EST

    Thanks to Katie and Nurse Tessa for their encouraging words and useful informantion and a special "shout-out" to Ambassador B (an octogenarian) for responding to my request to hear from someone nearer my own age (78).  I've decided to wait for my app't with the cardiologist, as he is the fellow who read my echocardiogram, and my PCP seems to think he is quite good.  GA is quite byzantine when it comes to getting to see specialists.  They won't make appointments directly with patients.  The Primary Care Physician must send a referral form with reasons given for the referral, any case notes and lab results to the specialist , who will review the materials and decide if they will accept the patient.  The patient must wait for the specialist to call to set up an apppointment.  Naturally, everything takes forever.

    Elaine

  • AHAASAKatie
    AHAASAKatie, February 7,  2019  8:52am EST

    FEM1940, I am so glad we were able to help you. :) Please come back and tell us how things go! Best Katie 

  • JoeSzzz
    JoeSzzz, February 15,  2019  5:59pm EST

    Hello FEM1940. I am 50 years old.

       I have had heart failure for the past 10-15 years. I take massive amounts of ubiquinol. I have been good for the past  10 -15 years - eventhough I have had "events" that would scare anyone. I used to go to the ER. I would run up big bills. I no longer do that after taking 1 gram of ubiquinol every 30 minutes until about 2 bottles are gone. This has been great! I still lift weights and excercise, with very little shortness of breath and ankle swelling comes and goes. How ever I am now treating the underlying problem....age. Your body is just wearing out! I have now - just last week - starting to take HGH to repair my heart and other organs. HGH reaches it's peak when you are in your 20s. You have to be careful, because as you age, you can grow some "bad stuff" in your body. When your body was young, you had young materials and very few defects, as you get older, drinking, bad eating, pollution, other harmful agents , take a toll on your body. So you have to be careful while taking HGH. HGH is mostly offered to the affluent class because they have the money to pay for the high price of HGH. You might be able to get it through your insurance company. The stuff used to be cheap....a long time ago. Massive amounts of ubiquinol and HGH. I hope this helps!

       My next step is to get an injection form of ubiquinol to the market so people can see the amazing results!

  • AHAASAKatie
    AHAASAKatie, February 18,  2019  3:46pm EST

    Good afternoon, I wanted to share this article Expert Sounds the Alarm on Medical Misinformation . There is a place for supplements in recovery, however it is very important that you talk with your doctor before begining any new treatment plan. Thank you Katie

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