Margo1010
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Margo1010, September 20,  2020  7:57pm EST

looking for people with CHF low EF around 27

I had no distinct symptoms. Slight tingling in my left hand. I hadn't been up to my usual physical ability for about 6 months but did not connect the dots. I arrested in the ER and was brought back. I have heart failure. My ejection infraction rate was 17. I got the ICD and it's 27 now. I have been exercising and walking. Cardio rehab started last week. Anyone have an enlarge left ventricle with 27 improved to a higher number? Does exercises help it? Arrested June 10th 20.

5 Replies
  • AHAASAKatie
    AHAASAKatie, September 24,  2020  9:45am EST

    Thank you so much for sharing what is happening in your world. I can share the information we have on Heart Failure to help you manage the condition. Please know that research has brought us a long way in treating heart failure. You are doing all of the right steps to manage your HF and we are here to support you. 

    Best Katie

  • kingsalmon
    kingsalmon, October 6,  2020  6:44pm EST

    I had a heart attack in June which left me with myopathy and a CEF of 26 as measured by a MUGA test early Sept. I exercise all the time and I do suspect  my CEF has improved at least a little. Why do  think that? Because my symptoms of tachycardia have actually improved noticeably since last month. They are nowhere near as scary. I have not had this certified by a new test.   This is one reason why I still have not gotten the Defibrillator implanted.   On the one hand I know I probably need it. But reading all the details it appears a little dangerous to have it installed with other complications down the line. I am feeling so good day to day I keep dragging my feet making an appointment.

    One more thing. They cannot give me all the drugs they say will help me (mostly Beta blockers) because my blood pressure is too low.  I don't know how'd I'd fare or if I'd need the ICD IF I could take more drugs.  One Dr said getting the ICD could allow them to increase my beta blocker dose which would improve my heart function.

    I know this is more than you requested but I just needed to talk, Whew! Thank you.

  • Jim1962
    Jim1962, October 8,  2020  5:55pm EST

    Everybody is different and it also depends upon the cause of the heart failure. I'd ask at cardiac rehab (great choice to do that!) and also ask your cardiologist. I've had heart failure for 4 1/2 years and have felt pretty much the same. I won't be running marathons, but I wouldn't have been anyway. I still exercise as recommended by my cardiac rehab staff. I originally had an ejection fraction of 18% when first admitted to the hospital, which went up to 31% a few months later. I have a lot of scar tissue on my heart muscle, so I think may have topped out, but who knows? Others at CR have gotten back to normal. Exercise is great for you, and everybody else. I also have an ICD and an enlarged left ventricle.

  • Jim1962
    Jim1962, October 8,  2020  7:03pm EST

    kingsalmon,

    My cardiologist (at a highly rated cardio hospital) recommends an ICD for EFs below 35% per studies and standards. Mine is stuck at 31% and after doing all I could (cardiac rehab, meds, eating mostly whole food plant based WFPB), I finally wrapped my head around the fact that I was far better off getting the ICD. At first I was Nope! Nope! Nope! but I eventually realized that it was for the best. I got it 9 months after my initial hospitalization. Talk to your cardiologist about your reservations. It's a bit scary to think about at first, but it's not that bad. You get used to it and don't even think about it anymore.

    Re beta blockers: ICDs also have pacemaker functionality built in. I was on beta blockers and my heart rate went below 50 bpms when sleeping which concerned the docs. The ICD detects this and 'paces' me up when that happens. Bonus. I'm off beta blockers now, since I transitioned to Entresto.

    Carrie (Zapgirl) Romero got an ICD at the age of 28 in 1997. It has saved her life 4 or 5 ish times so far. https://www.heart.org/en/news/2018/09/24/look-its-a-lifesaving-device-time-to-send-a-selfie-to-zapgirl 

    17 year old Claire Crawford got an ICD after she suffered Sudden Cardiac Arrest during a high school volleyball game. She was VERY lucky that it happened with highly trained people around her with access to a nearby AED (Automated external defibrillator). 95% of people who suffer sudden cardiac arrest in a non hospital evironment die.I feel blessed to have a defibrillator 'built-in'. Heck, I think everybody should get one ;) https://www.youtube.com/watch?v=1z1_z2l0u6c

  • kingsalmon
    kingsalmon, October 10,  2020  4:43pm EST

    Jim1962,

    Thanks for all that.. I finally decided to bite the bullet and get the ICD. (Which I always knew in the back of my mind I would do anyway. I just needed more time to psych myself up for them to stick wires in my heart!)) 

    I have an appointment for 19 Oct. We will see how the future unfolds

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