jrob57
  • 4 replies
  • 198 views
  • 4 followings
jrob57, April 16,  2021  9:59pm EST

Heart failure miracle anyone?

Hi everyone. My family and I are extremely stressed because one of our loved ones had a heart attack and did not tell anyone. He has a fear of hospitals and decided not to get help until his breathing got really bad. We begged him to go to the hospital and upon arrival he was taken to the ICU. There they incubated him and had him using the ventilator for about 3 days. While he was being stabilized, the doctor told me that his heart attack damaged his heart beyond repair and that he would need a heart transplant. This is stressing everyone out because he doesn't have health insurance nor can we affor the procedure. I'm just looking everywhere for hope at this point. If anyone has a store similar to his and is living a normal life without the transplant could you please tell me about it? Was your heart able to repair itself enough to function? Thank you in advance. 

4 Replies
  • AHAModerator
    AHAModerator, April 17,  2021  11:34am EST

    Hello,

    Thank you for joining the support network and for sharing your family's story. I'm so sorry to hear that your loved one is going through this, I can't imagine how hard it must be for him and your family. I hope that you will be able to connect with others on the support network who have had similar experiences and find the support you're looking for. As you wait to hear from others, I can share some resources for caregivers. Please continue to update us on how your family is doing.

    Best Wishes,

    AHA Moderator

  • Becky4242
    Becky4242, April 18,  2021  2:32am EST

    So sorry that your family and loved one are going through this awfully stressful and overwhelming time. Was wondering if you could give a few more details in order to be able to give you the very best ideas and advice in hopes of helping you and your loved one. When did this occur? How old is the family member? Is he still in the hospital? Did he go to the hospital the same day that he had the symptoms with difficulty of breathing? 

  • jerzeycate
    jerzeycate, April 18,  2021  9:04am EST

    While my situaation is different, my heart was damaged "beyond repair" by a virus, I can tell you that it's been 8 years and 4 months-- since I was told that I had 3 months to live without a transplant. I was then told I was not eligible for transplant. 8 years 4 months since my husband was told to "Take her home. Make her Comfortable. Get her affairs in order."

    I've had 2996 days, 71904 hours, 4314230 miinutes, 258854400 seconds of life, of relationships, of memories since a doctor (who was promptly fired) gave me a "3-Month Expiration Date".

    It's Crucial that cardiac patients receive ongoing, intensive medical care.

    Is this person able to apply for Medicaid?  Is there a Clinic in the area that treats patients without insurance? How about a major hospital (they usually see patients with fees based on the ability to pay?) The ACA provides for insurance coverage at decreased and even no cost to people who are uninsured. Here is a link to the website for the healthcare marketplace. Check it out. There you can find various insurance policies ALL of which are available at decreased, and in some cases No Cost.  https://www.healthcare.gov/

    My care has involved multiple hospital stays (in the early years after I developed a cardiac problem) major lifestyle and dietary changes (that involved a Nutritionist and Physical Therapy), Multiple Medication protocols, in home nursing and PT/OT, implantation of a complex cardiac device (a CRT-D)... And on and on.

    I say this to stress to you the need for a cardiac patient to receive ongoing care and intervention. For that, you must be able to access health care services. 

    What we do each day, the decisions we make as small as many may be, determine how long we will live and what the quality of our life will be. Hope is not lost, but it's a tough road to travel for patients and for their families. Please find a support system to help you with the process. You, and the patient, Do Not Have To Do This Alone. There are people, there are places with people who will help you... If you need help finding support resources, please reach out here. Someone should be able to help you find the information/resources.

    For now the patient needs to get on a heart healthy diet, get rid of the salt shaker, and start making lifestyle changes that will help their body heal. (When the heart is damaged the whole body is impacted). Here's a great link to the AHA Recommendations..https://www.heart.org/en/healthy-living/healthy-eating/eat-smart/nutrition-basics/aha-diet-and-lifestyle-recommendations

    The amount of information and resources  available through this website https://www.heart.org/ are truly Endless. I have found many answers in these pages... Please take some time to check out what's available for both Patients and Families...

    While there is life there is hope...

    Cathy (aka JerzeyCate)

     

  • mghd20
    mghd20, April 18,  2021  3:22pm EST

    hello Jrob57.

    Very sorry for all that you're going through. I 'can' imagine all that you're going through because I'm the one who put my family through the same thing. 

    "You have to have that looked at closer." "Why aren't you taking your Meds?" Me thinking, " I probably should go to the doctor about this hacking cough but it's probably just an oncoming cold or bug in my lungs. It usually clears up on it's own". It took crawling upstairs to bed and practically falling to the ground, just putting the barrels out, to get me to the doctor.

    Hope you find your answers and more importantly, your loved one will become desperate enough to concede and let someone help him. Tell him, "these people who are going through what you're going through say that, you'll be thankful you did. [ give up / stop fighting ].

    Yes, please stay close and keep us updated.

    Warmly, mghd20

dark overlay when lightbox active
dark overlay when lightbox active
dark overlay when lightbox active
dark overlay when lightbox active