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Mrstwink, November 14,  2020  4:10pm EST

Heart Failure -EF 20%

My husband was diagnosed with heart failure in August of this year, 2020. He was having breathing issues and was retaining a lot of fluid. His EF was 15%. He had a right heart catheterization and found no blockage. He had lots of bloodwork, echo, and X-rays and was sent home with meds and instructions on eating a low sodium diet and limititing fluid intake. He was told majority of patients live a long fulfilling life following this regime. He felt no better when home and his blood pressure was extremely low everyday.

He went for a second opinion and the dr immediately admitted him to the hospital and was told if he didn't come in when he did it would of ended very badly. He then had a left heart catheterization (swan), X-rays, bloodwork, and echos. They put him on PRIMACOR (continuous  PICC line), changed up his meds and is now home. He has had the PICC line for 2 1/2 months, has had a **** marrow biopsy, heart biopsy, and he wears a lifevest 24/7. He just had and echo last week and was told his EF is now 20% (we had our hopes up it would be much higher). The drs talked about weeding him from the PICC line medicine, an ICD, LVAD, and/or heart transplant.  

There is no known cause for his HF. We are scared out of our minds and so afraid that he won't see any improvement. Maybe we're being too impatient. 

3 Replies
  • JamesPL
    JamesPL, November 15,  2020  5:36pm EST

    Being impatient is certainly understandable. Anyone would be anxiuos to improve after being given the diagnosis that your husband has been given. Have to asked or looked into cardiac rehab at all? It may be too early for him but the program is an excellent way to start the process of strengthening the heart. Any kind of movement, even short walks, are good for the mind and body. Whatever his cardiologist advices, try not to panic. Do all you can to educate yourselves. This can help to offer some relief if you have a good understanding of his condition and treatment.

    Wishing you bith well!


  • Smiley76
    Smiley76, November 16,  2020  1:58am EST

    I wrote iths same story in 2018 when my husband who was 44 at the time was admitted to the hospital. Every thing but the second part of your story was us. My husband had pneumonia and trouble breathing. Diagnosed with heart failure and cardiomyopath and retaining water. They pull about 10lbs of water in 5 days. Was told to go home reduce liquid intake and start on a low sodium diet when he left the hospital, his EF was 15 to 20% all his bloodwork was in the normal range he had an echo & CT scan. The angiogram showed his veins were clear. He was out of work for 5 to 6 months took blood pressure pills, carvedilol Entresto( 3weeks) made him super sick. water pills. His 3 months visit Ef was 28% oh he never had a life vest either, 6 month 38% (out the danger zone) 12months EF 43% now at 2 yrs about 47% normal is 50-70. Dr sad he can live a normal long life with 47%. He will never be 💯 like before. The meds make then tired and burn out fast when doing extra activities. So after the danger zone go for walks and build up some stamina.  You both have a long road, I've been there but there is light at the end of the tunnel. My husband was petrified of a heart transplant or a pacemaker so just stay positive follow the routine ur doctor gave you do cardio rehab if you can when it's time and you guys will be fine, just take it one day at a time. 

  • Fernie
    Fernie, November 21,  2020  5:41pm EST

    I'm 44 and just got an ICD in June. My EF has been 35-40%. After a few more stents (I have 8 of them.) My EF was 35. I am fortunate that to this date I've had a normal sinus rhythm so I am not paced. My ICD as of now is like having an on all paramedic under my collarbone that is working 24/7. It is just there in case my heart decides to do something wrong. :) I don't regret it at all and It makes me feel more comfortable being home alone even when I'm sleeping :) Education helps HF folks I know myself included to participate in what is happening. Reputable sources like AHA are great as well known and information from respected institutions help me know and that Midwest's d as much ch as I do. A second opinion saved my life so good for you for getting one. Beat wishes and take care. Make sure you are taking care of yourself too. Thank you for being a good caregiver, many people don't have people to help them. 

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