Gmccanna
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Gmccanna, January 7,  2021  12:08am EST

Does a BIVICD improve EF?

I'm 47 years old and was diagnosed with CHF in September, 2020.  I run marathons and eat healthy already.  My EF was in the range of 20-25%, but after 90 days of rest and medications, my EF is a solid 25%.  So now my Cardiologist wants to put a BIVICD in me.  Anybody else have a similar case like mine?  Have you noticed if the BIVICD improved your EF, and how long did it take if so?

Thank you.  

6 Replies
  • jerzeycate
    jerzeycate, January 7,  2021  2:29am EST

    In 2013 a viral infection infiltrated my heart, decimated the electrical system leaving me with an EF of 11% and a prognosis of 3 months without a transplant.

    After 6 months mainly in the hospital an experimental **-Vent  (Medtronic Quad S CRT-D) was implanted to buy us more time to find an answer. The next morning, after months of not being able to get out of bed without assistance. I got up and went into the bathroom on my own. The Nurse found me crying on the toilet. Two days later I dressed and walked out of the hospital. Within 6 months my EF was at 30%. A year later it was at 55% where it remains. While I had much damage and many complications due to 6 months with such low blood oxygen flow to my organs, things began to resolve and my body to repair itself.

    Two days ago, because my battery was down to 30 days... I had a brand spankin new Medtronic Claria MRI Quad CRT-D SureScan (a **-Vent) implanted. The advances in technology are amazing. From what I read this guy is a real Beast. Please know that it is in all sincerity I say that yesterday morning, despite the surgical area discomfort, I already felt improve ment from the new device. A SOB and fatique I'd been plagued with for months is gone. I can't imagine where this journey with my new main squeeze (The Beast) will take me next.

    Here is a link to a video I found that really explains well the work of the **-Vent using the analogy of a Rowing Team.

    **-Vent Video

    I wish you the best. Please let me know if you have further questions.

    It's A Great Day To Be Alive...

    Cathy

  • tryingmybest
    tryingmybest, January 7,  2021  9:07am EST

    My father was diagnosed with CHF about 15-20 years ago now and they put in an ICD/pacemaker right around that time. It has worked magic for him (that and medications) and only now starting to take a turn to worsening symptoms (at 81 years old). I'm convinced that he wouldn't be here right now without that device. He did have to have the battery replaced on it just last year which was a pretty simple procedure.

    I wish you all the best and am so sorry you're facing this dianosis but remember that what you read online isn't always the case. I have a feeling there will be more and more innovations as we age too. xo

  • Gmccanna
    Gmccanna, January 9,  2021  11:32pm EST

    Thank you Cathy and Tryingmybest, your testimonies has helped in answering my questions and instilled greater hope for me and my family.  Monday, January 11th is the big day for implantation of the BIVICD.  I'll try to keep all posted.  
    Im also grateful to have a forum like this.  I'm a very active guy and sitting at home not working for 4 months has driven me crazy.  This is a good outlet. 
     

    Thank again! :)

    Grant

  • jerzeycate
    jerzeycate, January 10,  2021  10:38am EST

    Wonderful news...

    My new beast is not yet a week old and he is making a tremendous difference in my life.

    I wish you the best in your ongoing recovery.

     

    It's A Great Day To Be Alive...

     

  • Gmccanna
    Gmccanna, January 15,  2021  1:01am EST

    Jerzeycate, glad your feeling well with your new "beast"! :)

    I feel slightly better myself, only been 3 days since the surgery but took two 20 min walks and was not to exhausted!  
    Quick update:  The BIVICD surgery, on 1/11/2021, had some complications, I'm fit/skinny and the BIVICD doesnt fit well in my chest (that's what they've told me...though you would think anyone normally would plan ahead and see if something would fit before you start inserting...right?).  It was extremely painful and the surgical site was swollen outward almost 2" from my chest.  Two nurses panicked and  pushed ******* the site to crush the swelling, which in turn created more pain.  I asked them for something to relieve the pain (at this point I was about to throw up or pass out from it), but was told the doctor doesn't believe in using pain medication, didn't even have a DEA license.  We had to call my cardiologist and raised a little hell to get some relief and correction with my new implant.  After all that mess, that night I noticed when I would breath in I would feel my heart twitch, then when I exhaled it would twitch again, hold my breath and no twitch.  The next day we went to have a Medtronic's sales/tech tweak my machine and all is good so far.  
    Anyway, besides all that craziness, I do feel better and recovering well, that's important. 
     

    GMcCanna

  • jerzeycate
    jerzeycate, January 18,  2021  1:18pm EST
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    Wow...

    That's a tough one.

    I must say my anesthesia and pain management were well handled at TGH.

    I had absolutely no memory of the procedure, and had 3 IV doses of pain meds in post sugery.

    I believe, as do my physicians, that that makes all the difference.

    We have to have lots of things done to us.

    Many are quite unpleasant.

    There's no reason to be left in pain.

    Which device did you have implanted?

    I'm more impressed with my new beast every day. Several meds have already been decreased because it's working so well.

    I pray all continues on the straight and narrow as you begin this new leg of your journey.

    It's A Great Day To Be Alive...

           Cathy

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