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Drchristina, February 1,  2019  3:07pm EST

Disability hearing approaching -heart failure

Hello, I apologize if this topic has been discussed but cannot find it. I was diagnosed with HF 20 months ago at age 49. I had experienced 2 heart attacks and 8 strokes (blood clot in heart breaking off)-but I did not realize I was having them, working full-time and was not diagnosed until I almost died in ER with an ejection fraction of 10. Now I have an EF of 35-I quit drinking, smoking, eat well, and am on 8 medications. I applied for disability last year and finally have a hearing with a judge. Had to stop working 2 years ago and have supported myself by spending all my retirement savings and I recently sold my house. 

MY question: I have a great disability lawyer who has prepped me for the hearing. But my challenge is to do a good job explaining how my overwhelming fatigue that keeps me on the couch a significant % of time. If I do minor activities I am knocked out for hours. Using the word fatigue seems to make people think I am just tired in a normal way. I compare it to having constant mono but my lawyer says that is not a good comparison. I have worked extremely hard all my life, was dedicated to my profession of working on child abuse and substance abuse. It breaks my heart that I cannot work (my cardiologist supports my inability to work), and I feel very guilty for needing SSDI. I am panicking as I have used up all my financial resources. Anyone have suggestions on how to explain how I feel to the judge? Thanks - Christina

5 Replies
  • Joe416869
    Joe416869, February 3,  2019  6:04am EST

    I will keep my fingers crossed for you , good luck 

  • AHAASAKatie
    AHAASAKatie, February 4,  2019  9:20am EST

    Good morning, this must be so hard and frustrating for you. I do think the final decisions on what to say should be between you and your lawyer as this is well out of our ability to advise you. However, if he did not like the comparison to Mono, it is perfectly acceptable to ask him to share more specifics of what he wants to you say. Please let us know how things go. Best Katie 

  • Kdogg240
    Kdogg240, February 4,  2019  1:37pm EST

    Hi Christina, good luck to you on everything  that is challenging you. I will say that we as people that have gone through heart ships, the system sometimes makes us feel that it is against us. My wife is on SSDI and although she was awarded ssdi fairly quickly, the process can be quite confusing. Especially when you have worked for everything you have, and are not thinking you deserve it. But just know it is there for the reason you need it. Even if things don’t go well in court, don’t be discouraged, it is your right to keep applying for ssdi. People who really need it should not feel the way you are feeling. Keep fighting for yourself and my family and I will keep you in our thoughts and prayers. 

    Kindest regards Kevin 

  • JoeSzzz
    JoeSzzz, February 15,  2019  6:21pm EST

    Hello Christina,

       I have had heart failure for the past 10-15 years. I take massive amounts of ubiquinol. I have been good for the past  10 -15 years - eventhough I have had "events" that would scare anyone. I used to go to the ER. I would run up big bills. I no longer do that after taking 1 gram of ubiquinol every 30 minutes until about 2 bottles are gone. This has been great! I still lift weights and excercise, with very little shortness of breath and ankle swelling comes and goes. How ever I am now treating the underlying problem....age. Your body is just wearing out! I have now - just last week - starting to take HGH to repair my heart and other organs. HGH reaches it's peak when you are in your 20s. You have to be careful, because as you age, you can grow some "bad stuff" in your body. When your body was young, you had young materials and very few defects, as you get older, drinking, bad eating, pollution, other harmful agents , take a toll on your body. So you have to be careful while taking HGH. HGH is mostly offered to the affluent class because they have the money to pay for the high price of HGH. You might be able to get it through your insurance company. The stuff used to be cheap....a long time ago. Massive amounts of ubiquinol and HGH. I hope this helps!

  • AHAASAKatie
    AHAASAKatie, February 18,  2019  3:47pm EST

    Good afternoon, I wanted to share this article Expert Sounds the Alarm on Medical Misinformation . There is a place for supplements in recovery, however it is very important that you talk with your doctor before begining any new treatment plan. Thank you Katie

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