Jenn159335
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Jenn159335, March 5,  2021  7:16pm EST

Congestive Heart Failure At 44 years old

I didn't know what to expect, I'm new to this site, and this would be my first time in nearly 2 years of caregiving. I'm 42 years old now, my husband is 46, and this is not in any ways  how I saw my 40's playing out. All that hard work for years, it's time to have fun isn't it? Because instead after battling sepsis shock, and pulling through like a champ, we learned it destroyed his heart. EF of 13%, a push out the door with a 6 month time line, and a hospital bill that nearly bankrupted us. I guess I should have gotten the extra coverage, in my defense who gets diagnosed with congestive heart failure when you're a healthy 44 year old right?! Heck no I'm not gonna need that much medical insurance! Whoops.

And so here we are, no friends....because who wants to watch a person die from heart failure? I'm sure they had stuff to do that couldn't be put off like....Zumba. 
 

Anywho, when we got home, I was pretty annoyed my husband was simply sent home to die, no effort or plan to keep him here, just go home and die. Well, I thought surely we can do better than dead. Can't do worse, so I learned, read medical studies, annoyed cardiologist until they would talk to me and tell me what I couldn't find on line....I took all of the things I learned and put a plan into place, and my husband and I went to work in keeping him alive. 
Yesterday he had his latest echocardiogram, his EF is holding at 68. He's doing very well, and I'm a wreck. I'm exhausted, overworked, a bit resentful, and I see no light at the end of this very long tunnel. I know how lucky we are, and I'm grateful for his current condition, and I'm also not seeing how this is any kind of a life for me. It's 24 hours a day, everything has to be cooked by me, even bread, to maintain a low sodium diet. 2,000 milligrams is not a lot....it's exhausting. I didn't know being a caregiver would be this hard.

3 Replies
  • AHAModerator
    AHAModerator, March 6,  2021  6:33pm EST

    Hello there, 

    Thank you for reaching out to the Support Network and sharing your experience. I'm sorry you're going through a tough time with your husband after his diagnosis - he is lucky to have your support. As you hear from others on the Support Network about their experience, I want to remind you that you are not alone and hope that you can find a sense of community and support here. I can also share some Caregiver Resources for you to check out. Please keep us updated on how he's doing.

    Best wishes, 

    AHA Moderator

  • Blonde75695
    Blonde75695, March 15,  2021  6:20pm EST

    What did you learn online? That's amazing 13% to 60%.

    Thank you

    Kelly

  • S2021
    S2021, April 5,  2021  12:36am EST

    I'm new here. I can only imagine how tough this is for you. I was recently diagnosed with HF. I'm 46. I would love to hear how you've helped increase the EF so significantly. 

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