• 3 replies
  • 2 followings
Jenn159335, March 5,  2021  7:16pm EST

Congestive Heart Failure At 44 years old

I didn't know what to expect, I'm new to this site, and this would be my first time in nearly 2 years of caregiving. I'm 42 years old now, my husband is 46, and this is not in any ways  how I saw my 40's playing out. All that hard work for years, it's time to have fun isn't it? Because instead after battling sepsis shock, and pulling through like a champ, we learned it destroyed his heart. EF of 13%, a push out the door with a 6 month time line, and a hospital bill that nearly bankrupted us. I guess I should have gotten the extra coverage, in my defense who gets diagnosed with congestive heart failure when you're a healthy 44 year old right?! Heck no I'm not gonna need that much medical insurance! Whoops.

And so here we are, no friends....because who wants to watch a person die from heart failure? I'm sure they had stuff to do that couldn't be put off like....Zumba. 

Anywho, when we got home, I was pretty annoyed my husband was simply sent home to die, no effort or plan to keep him here, just go home and die. Well, I thought surely we can do better than dead. Can't do worse, so I learned, read medical studies, annoyed cardiologist until they would talk to me and tell me what I couldn't find on line....I took all of the things I learned and put a plan into place, and my husband and I went to work in keeping him alive. 
Yesterday he had his latest echocardiogram, his EF is holding at 68. He's doing very well, and I'm a wreck. I'm exhausted, overworked, a bit resentful, and I see no light at the end of this very long tunnel. I know how lucky we are, and I'm grateful for his current condition, and I'm also not seeing how this is any kind of a life for me. It's 24 hours a day, everything has to be cooked by me, even bread, to maintain a low sodium diet. 2,000 milligrams is not a's exhausting. I didn't know being a caregiver would be this hard.

3 Replies
  • AHAModerator
    AHAModerator, March 6,  2021  6:33pm EST

    Hello there, 

    Thank you for reaching out to the Support Network and sharing your experience. I'm sorry you're going through a tough time with your husband after his diagnosis - he is lucky to have your support. As you hear from others on the Support Network about their experience, I want to remind you that you are not alone and hope that you can find a sense of community and support here. I can also share some Caregiver Resources for you to check out. Please keep us updated on how he's doing.

    Best wishes, 

    AHA Moderator

  • Blonde75695
    Blonde75695, March 15,  2021  6:20pm EST

    What did you learn online? That's amazing 13% to 60%.

    Thank you


  • S2021
    S2021, April 5,  2021  12:36am EST

    I'm new here. I can only imagine how tough this is for you. I was recently diagnosed with HF. I'm 46. I would love to hear how you've helped increase the EF so significantly. 

dark overlay when lightbox active
dark overlay when lightbox active
dark overlay when lightbox active
dark overlay when lightbox active