bluffman2
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bluffman2, May 28,  2020  6:22pm EST

43 YO heart failure and 15% EF

I am 43, did not live a perfect lifestyle for the last 20 years,drank (quit 8 months ago) smoked (quitting now) have had a major heart attack,half my heart is basically dead have had 3 stents put in and my EF is 15%. to me that doesnt look to good, having a defib put in in 2 weeks and hope by quitting smoking my EF will improve. My EF has went down to 15 since the stents so I guess only time will tell if the meds are working. Feel like im on death row but no execution date. I work everyday and feel fine other than shortness of breath at times, I get 10k steps in everyday while working and my job is very physical in the means of lifting heavy objects throughout the day...dazed and confused
6 Replies
  • jerzeycate
    jerzeycate, May 29,  2020  7:47am EST
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    Seven years ago a virus decmated the electrical system in my heart. My EF was 11% and we were told that without a transplant, "she has 3 months." Next they told us I was not elgble for transplant. The Treatment Plan of the first Cardiologist they called in was "Take her home. Make her comfrtable. Get her affairs in order."  NOT. IT's been seven years and a few months. I did, and continue to do, everything my Cardiac Team feels is appropriate and may help. A complex cardaic device (in my ase an S CRT-D) was implanted in my hest to buy us time and shocked everyone when it took over completely for my heart and within months my EF was up to 40%. The EF eventually reached 55% where it remains today. At this point all signs of CHF have resolved. COPD resolved. Kidney problems I developed secondary to the cardiac issues--also resolved.

    I can't say what will happen in your case. I can share that in my case, where there was no hope,hard work medications, an experimental device, lifestyle changes, prayer and intervention hae resulted in nnothing short of a miracle. It has been, an occasionally still is, a whole lot of work. But the work is well worth it.

    Give it time. This is a marathon, not a sprint. Get a support system--I belong to several active Facebook CHF groups were I can find support 24/7. Keep moving if you can.

    Keep us infored and please let me know if there is any information or resources you ar elooking for.

    Remember: It's A Great Day To Be Alive...

              JerzeyCate

  • AHAASAKatie
    AHAASAKatie, May 29,  2020  9:10am EST

    Good morning, I can share what we have regarding living with heart failure to help with the education piece.  I am also a firm believer in looking back won't get you anywhere; what you did in the past, should be left in the past. Look forward to your future, follow doctors' orders, take small and sustainable steps to live healthily and you will gradually start moving forward. 

    And congratulations on stopping smoking, that is very challenging to do. We have some resources for that as well, should you need them. 

    Please know we are here, period. Here to listen, to support and to cheer you on. 

    Best Katie

  • JamesPL
    JamesPL, May 30,  2020  10:08am EST

    Please do not despair. Recovery takes a long time. Give yourself and your heart time to gain strength. After my bypass surgery, it took me many months to achieve some kind of normalcy especially in doing the things I used to enjoy. Meanwhile, you are doing the right things to regain your health by giving up those bad habits and exercising. Keep that up! I don't know if you've gone through a rehab program but if not, I strongly recommend it. The physical therapists will show you some exercises to continue to help you in your recovery. It is also a good mental uplift!

    Wish you the best of luck!

    Jim

  • hammerdown
    hammerdown, June 10,  2020  1:38pm EST

    Hey Bluffman, hang in there!!

  • bluffman2
    bluffman2, July 1,  2020  8:28pm EST

    had a defib put in last thursday, no pain but just sore.....still same ejection fraction......guess ill hang around for however long its meant to be..

  • Kmek62
    Kmek62, July 1,  2020  8:50pm EST

    Bluffman2,  give it time it's only a week, it can take awhile for EFs to climb.   My EF was 25 when diagnosed in Sept 2019, and stayed there.  In December, my cardiologist said it's time for a pacemaker as I wasn't getting better.  Had a Biventricular ICD implanted on Feb 4th and had first post implant Echo last Friday and my EF is now 50.   It's been a lot of hard work, diet exercise and taking all my meds.  My Cardiac Rehab team called the increase amazing and said it's probably a record which makes it an unusual increase.  I am diagnosed with CHF, Dilated Cardiomyopathy, A-Fib,  PVCs & Left Bundle Branch Block.  All due to a virus....no other explanation.  Hang in there!  You can do it! 😊

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