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Namaedwards, January 17,  2020  1:47am EST

Recent diagnosis


I'm 32 and recently learned i have ideopathic dilated cardiomyopathy. I'm on meds and following doctors instructions. It is scary and hard at times but reading other stories helps a lot. I'm holding onto to the fact that I'm able to continue everyday function and walks. I hope it gets better


4 Replies
  • AHAASAKatie
    AHAASAKatie, January 17,  2020  10:16am EST

    Thank you so much for sharing what is happening in your world. I am so glad being able to read the stories has helped you. Please know that we are here to listen and support. Best Katie

  • marshamd59
    marshamd59, January 20,  2020  10:52am EST

    I know how scary it is when you get that diagnosis and especially when you are younger. Sounds like you're doing all the right things, taking meds, following drs orders, walking, hoping for the best. I've had dilated cardiomyopathy since 2006, so just know you can live with it and a lot of times without too many symptoms. It is good to know what symptoms to watch out for so if they get worse you can call you dr immediately and find out what's going on. I hope and pray your EF will improve and you'll continue being able to do all the things you love. 

    All the best! 💖


  • Namaedwards
    Namaedwards, January 21,  2020  10:31am EST


    Thank you. It's still all new and some days are better than others. Right now I struggle with not feeling resentful of the changes I've been forced to make, especially since I know they're for my best. But it's helpful to read about others and their journey. I've started seeing therapist as well to help with my mental health

  • marshamd59
    marshamd59, January 21,  2020  8:22pm EST

    I know just how you feel. It's hard not to have some resentment and especially being so young. I'm glad you're seeing a therapist. I hope it helps you. Also, you might want to think about doing cardiac rehab. It helped me a lot because I realized I could do more than I thought I could. Plus it was nice to talk to people with the same issues. 
    Wishing you all the best in your journey. 

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