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rhaselbeck, December 25,  2020  12:03pm EST

Non-Ischemic Dialated Cardiomyopathy

Hi everyone, I'm a 61 year old male, and I was diagnosed with cardiomyopathy in late 2019, with an enlarged left ventricle, left bundle branch block, and an EF of 33%.  During this time I was fairly active, hiking, biking and cross country skiingand doing a rigorous spin class twice a week, but I would still get winded after climbing a single flight of stairs and I would occasionally get dizzy and light headed.  In August 2020, I lost consciousness and collapsed while I was walking to the kitchen.  When I came to I was crumpled on the floor in great pain as I had broken my ankle in the fall. Docs thought I had gone into V-fib, so along with fixing my ankle they installed an ICD to shock me if V-fib happens again and to help my right and left ventricles pump in unison. Now is Christmas 2020 and I feel better with less fatigue, my EF is up to 48% and I've only been shocked once so far. Maintaining moderate exercise, eating healthy and loosing weight, keeping on my meds and doing Cardiac Rehab twice a week.  I'm hopeful for further improvement and no more surprises. 

2 Replies
  • AHAModerator
    AHAModerator, December 26,  2020  3:30pm EST

    Thank you for sharing your experience with the community.

    I can imagine this must be very frustrating for you, but it sounds like you are doing better. Good to hear about your exercise, eating, and weight loss - great job!! 

    We're hopeful for further improvement and no surprises as well!

    Keep us updated on your progress!


    The AHA Team

  • marshamd59
    marshamd59, February 22,  2021  9:48am EST

    Wow, that's quite the story. So glad you made it through and are improving. Sounds like you're doing all the right things. Glad you've got an ICD implanted as your insurance policy just in case. I have similar issues to yours and also have an ICD. Luckily I've never been shocked. How is 2021 going for you so far?  

    Wishing you all the best!


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