Lewismc123
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Lewismc123, October 27,  2020  7:35am EST

Guidance

Hi. 

I'm 30 year old male from the **. I was checked over in 2017 as I was entering the London marathon and at the time they had found that my heart was enlarged with an EF of 61%. I was advised not to run and to come back a year later. The next MRI was performed and my heart had reduced (still large) and the EF was 60%.  I was told to do moderate exercise and they would check again a year later for extra care.  2 years later I have just received news that my heart size is down marginally but the heart function on both sides had reduced and the EF is now 51%. 

 

They suspect early dcm and want to start treatment with Ramipril until I see a specialist.  I'm so worried and scared I was hoping to have some guidance from people living with DCM. 

 

Thank you in advance

Lewis 

5 Replies
  • AHAASAKatie
    AHAASAKatie, October 27,  2020  9:31am EST

    I am so sorry that you are having to manage this! I know it's a lot to take in all at once. I can share the information we have on dilated cardiomyopathy with you. Please know that we are here to help and support you through this time. 

    Best Katie

  • Lewismc123
    Lewismc123, October 27,  2020  2:02pm EST

    Thank you. I'm just struggling to come to terms with it right now. I have a call with my cardiologist tomorrow for more information but I suspect i won't know anything further until I speak with the specialist 

  • marshamd59
    marshamd59, November 3,  2020  10:01am EST

    Hi Lewis,

    Welcome! You came to the right place for support and encouragement. I know it's a scary thing to be told you have heart problems. My diagnosis was 14 years ago. It's good they found it! Now you can get to the right team of doctors, get on the right medications, the right diet and exercise. Knowledge is power! There are good medications these days and lots of procedures they can do IF you ever need them. The most important thing is finding the right doctor who listens to your concerns and communicates well with you. There at lots of us living full lives with these heart issues. Keep us updated on your journey!

    Wishing you all the best!  Michelle

  • Caroline65
    Caroline65, November 28,  2020  2:24pm EST

    What you have is what we call in America, CHF, Congestiove Heart failure, which is an enlarged heart. I developed that while I was waiting to have my aortic valve relacement. It ws hard to do housework, laundry and work. But I managed despite no much sleep during the wait. It is scary, but you will be fine. Hope you listen to the doctor till you see and get checked by the Heart Specialist. Just hang in there. And be educated on everything you need to get through this. 

  • Lewismc123
    Lewismc123, November 30,  2020  4:53am EST

    Thank you kindly for your words. 

    I've had the call and they are very much in the fence about if I have it right now due to the different hospitals potentially measuring my previous MRIs and my new MRI differently. I've just completed an ECG as my last one was over 2 years ago, now I just have to sit and wait for the call again. 

     

    Thankful I have found a community for help and support , wishing you all the very best and a magical Christmas 

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