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Namaedwards, March 15,  2020  1:51am EST

Covid 19 and precautions

Hey all,

Was just wondering if they are extra precautions we need to take with a dcm diagnosis? I don't feel I'm immuno compromised but what are things you guys are doing?

Hope everyone is feeling safe

5 Replies
  • jbspiro
    jbspiro, March 15,  2020  2:12am EST

    Good advice from a nurse on Twitter if you should get the virus: I know we’re all tired of hearing/talking about it, but one thing I HAVEN’T really seen going around is advice for what happens if you DO get coronavirus (many of us will), we're only seeing advice for how to try to AVOID it. So as your friendly neighborhood RN, a wee thread:

    Things you should *actually* buy ahead of time (Erm, not sure what the obsession with toilet paper is?): Kleenex, Acetaminophen (Tylenol) in 325 mg tablets, Ibuprofen (Advil) in 200 mg tablets, Mucinex, Robitussin or DayQuil/NyQuil, whatever your cough medicine of choice is.

    If you don’t have a humidifier, that would also be a good thing to get. (You can also just turn the shower on hot and sit in the bathroom breathing in the steam). Also a good time to make a big batch of your favorite soup to freeze and have on hand.
    If you have a history of asthma and you have a prescription inhaler, make sure the one you have isn’t expired and refill it/get a new one if it is.

    You basically just want to prepare as though you know you’re going to get a nasty respiratory bug like bronchitis or pneumonia. You just have the foresight to know it’s coming.

    For symptom management, use the meds I mentioned. For a fever over 101, alternate Tylenol and Advil so you’re taking a dose of one or the other every 3 hours. Use both cough suppressants and expectorants (most cough meds have both). Drink a ton, hydrate hydrate. Rest lots.

    If you're sick, you should not be leaving your house except to go to the doctor, and if you do, wear a mask (regular is fine, you don’t need an N95). You DO NOT NEED TO GO TO THE ER unless you are having trouble breathing or your fever is very high and unmanaged with meds.

    90% of healthy adult cases thus far have been managed at home with basic rest/hydration/over-the-counter meds. We don’t want to clog the ERs unless you’re actually in distress. The hospital beds will be used for people who apamctively need oxygen/breathing treatments/IV fluids.

    If you have a pre-existing lung condition (COPD, emphysema, lung cancer) or are on immunosuppressants, now is a great time to talk to your PCP or specialist about what they would like you to do if you get sick. They might have plans to get you admitted and bypass the ER entirely.

    One major relief to you parents is that kids do VERY well with coronavirus— they usually bounce back in a few days, no one under 18 has died, and almost no kids have required hospitalization (unless they have a lung disease like CF).
    Just use pediatric dosing of the same meds.

    (If you want to share, copy and paste.)

  • jbspiro
    jbspiro, March 15,  2020  2:13am EST
    From Katie Bahn, Community Manager- I while I rarely pull info, I am taking the Stanford Article down as we are aware it is not accurate at this time. Best Katie
  • Chrisbattle
    Chrisbattle, March 15,  2020  4:28am EST

    I think its best to take advice only from trusted sources such as your cardiologist, specialist nurse, this website, or British Heart Foundation (I am Brit and biased!!).

    There have been online posts debunking some of the claims already doing the rounds on the internet, including the one from the Japanese Doctor mentioned above. its impossible to know if the claim or the debunking is true.

    For example, my doctor has been very clear that using asprin or ibuprofen will counteract my medications. I can only use paracetemol, so with the best of intentions, the nurse in the first post's advice could undermine my health in a very bad way. The nurse above does not know what medication I am on.

    It's best to continue taking prescribed medication so that our hearts are in the best shape for whatever comes at us. Then follow the rules about hand hygene, avoiding those with symptoms and avoiding busy or enclosed places.




  • AHAASAKatie
    AHAASAKatie, March 16,  2020  9:27am EST

    Good morning, I can share the information we have on COVID-19 and managing higher-risk situations.   I would also say follow your cardiologist, local officials and CDC mandates. Please know that we are here to help support and lower each other's anxiety regarding this crisis. Best Katie 

  • Upstater69
    Upstater69, March 16,  2020  9:35am EST

    Jbspiro and all other readers,  PLEASE check SNOPES, the second posting information  from Stanford is FALSE.    I received the same note via email from a friend yesterday, that is when I went to SNOPES to see if it was true or false information.  SNOPES is a very useful website for checking accuracy of information on the WEB.   

    I agree with Chrisbattle, ibuprofen interferes with most meds for cardiomyopathy, so Tylenol would should be used for fever.  Check the CDC and AHA websites for most accurate information.  Of course, work closely with your PCP  or cardiologist. 

    My husband and I are staying home and away from everyone as both of us are high risk.  We will go for walks daily and a drive for change of scenery. Home grocery delivery will be an option if need be.  Not taking any chances here.  We  are lucky and grateful to be retired and so far, asymptomatic. 







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