GiftOfLife
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GiftOfLife, November 21,  2018  1:44pm EST

Cardiomyopathy

Hi everyone, I am new on this site. I have just turned 52 years and have three wonderful sons. 

Early this year I had a cardiac arrest at work. Colleagues at work tried tried vehemently to perform CPR on me but with no avail. I was then rushed to hospital where they successfully brought me back to life the next day. I was told that the main reason for my cardiac I developed dangerous heart rythms called ventricula fibrillation (Arrhythmia). Recently this month just two days after my birthday I had another devasting attack where I lost consciousness and crashed onto the kitchne floor in front of my 10 year old son. Luckily, I now have an ICD on me which brought me back to life. The whole episode lasted for just 7 seconds according to the data obtained from my ICD. My little son was visibly shaken persistently asking what happen to me and why did I fall with a bang.

I am doing okay after treatment and have been given Amilodorane and Nedifine which I am taking on a daily basis in addition to Bisoloporol (7.5mg) which I have been taking for nearly 2 years now. My biggest worry which brought me on this forum is that the second episode has left me shuttered and hopeless since I do not know if ever another one is going strike. When I fell onto the kitchen floor I landed badly on my right knee and my knee cap is still hurting to date. Has anyone out there ever suffered from two traumatic cardiac arrests like I have done? If you're are out there I am very keen to hear from you on how you have managed to transform your "lost hope" into a real "meaningful hope" full of positivity. Sadly at the moment my mind is now constantly preoccupied with these dreadful thoughts and do not feel confident to be on my own. I have stopped driving and am to and from work by a colleague. Looking forward to hear from folks. 

5 Replies
  • AHAASAKatie
    AHAASAKatie, November 23,  2018  6:19am EST

    Good morning, thank you so much for sharing your survival story with us. Fear and anxiety are very common after such a traumatic event, in fact, many of our member's posts discuss this very topic. I look forward to reading responses from our other members and having them support you through this time. I am a survivor of a life-threatening DVT event and completely understand how scary this was for you and your family. Please know that we are here for you. Best Katie 

  • JamesPL
    JamesPL, November 23,  2018  9:09am EST

    What you have gone through would justifiably scare anyone. Many survivors on the network have had serious heart issues that often leave us scared and full of questions. You are doing the right thing by taking precaution and giving up driving for awhile. Have you had a lengthy discussion with your doctor at all? I wouldn't hesitate to do that. You should ask them many questions including the ones you've raised regarding anxiety. Whenever I have something going on with my body that I am not comfortable with, I talk to my cardiologist. More often than not, she will run some tests to help get answers. Let them know what you are concerned about.

    I wish you well.

    Jim

  • AmbassadorB
    AmbassadorB, November 23,  2018  2:15pm EST

    Welcome to a large group of folks that have come through  the same experiences.  I am one of this group.  Two comments that may lead to a higher quality of life:

    1.  I would second James PL's suggestion -  Review your current status with your physician/cardiologist.   What is recommended for you - re your next program - on the road to an active life?  The vast majority of folks like us, have become more involved in regular, supervised physical exercise.   The improvement in quality of life is amazing!

      2.  Participate in a Cardio Rehab program.   Get started with a regular, supervised cardio rehab group - once or twice a week.   While you are performing the various exercise routines, you will be watched by the medical staff, and your heart monitored electronically.  If you are already working out in such a program, plan and look forward to continuing a long term physical exercise regimen, on your own at a local club/facility.   You're young!  Lots of life to look forward to and enjoy!  

    Ambassador B

     

  • AmbassadorB
    AmbassadorB, November 23,  2018  2:28pm EST

    A second suggestion for you:  (AN INFOGRAPHIC - http://bit,ly/294jCnl)

    Go to NIA (National Institute on Aging), look up - " The Emotional Benefits of Exercise-Feel Good with Go4Life"

    Ambassador B

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

     

  • JamesPL
    JamesPL, November 23,  2018  11:02pm EST

    I couldn't agree with AmbassadorB more! Here's a recent study on the long term benefits of exercise.

     

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