DG2020
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DG2020, May 28,  2020  11:30am EST

Cardiomyopathy

I too have recently been diagnosed with cardiomyopathy. I have an echo in a few days and the closer it gets, the more anxiety I feel. It is comforting to read that this is all normal. I am glad that I found this site! 

9 Replies
  • eddiepullin
    eddiepullin, May 28,  2020  12:06pm EST

    Hi DG2020, I've had several echoes. It takes about 45 minutes and it is painless. A little messy from the gel. This will give your cardiologist an idea of how your heart is functioning. Just relax. I suffer from anxiety and that just causes more stress on the heart. I hope this helps you. Good luck! Let's pray for good results. Eddie 

  • HeidiCordero
    HeidiCordero, May 28,  2020  12:06pm EST

    Yes, you are right.  It is natural to feel anxiety.  What's also natural is after a while, perhaps a year, you won't feel as much anxiety especially as you experience ways that the doctors are able to manage your condition.  Then there may come that day when not only do you not feel anxious but like this pandemic, you begin to see some positive aspects of the diagnosis - Things like appreciating the people around you more or having greater empathy and understanding for someone who is facing an illness.  Even though all of us have a different journey, it's amazing how in the end it works out even if it's not what we expected. 

    - Heidi 

  • AHAASAKatie
    AHAASAKatie, May 29,  2020  9:04am EST

    Good morning, I can share what we have on cardiomyopathy with you to help with the condition management piece of this. I can also share that I have had 2 echos and they are a bit gooey and boring, but not painful. I always get distracted and try to watch the screen, which does not help things at all. :) Please know that you are among people who understand and are here for you. Best Katie 

  • DG2020
    DG2020, June 1,  2020  6:11pm EST

    Thank you for the comments! I appreciate it. I was wondering.. I have been taking medication for about 3 months now. It is supposed to strenghen my heart. What if it doesnt? Has anyone had a mechanical replacement? What are some of the things you had to change to help your heart? I have not really done anything different except lower my sodium intake. 

  • eddiepullin
    eddiepullin, June 1,  2020  6:46pm EST

    Hi DG 2020,

    I've had a defibrillator and pacemaker installed. I'm on Entresto, diuretics, aspirin, metoprolol, and spironolactone. 
    Walk, walk at least 30 minutes a day. Increase your activity with your Drs. Knowledge. Exercise is helping me. I gave up, started packing on pounds, doing nothing. 
    the exercise has gotten me out of that depression and funk I was in.

    Get out, enjoy life. I wish I would have started a year ago. Good luck to you! I hope my information helps 

  • philpet43
    philpet43, June 2,  2020  10:17am EST

    6 years ago I was diagnosed with cardiomyopathy (heart failure). Echocardiogram is the best diagnosis tool. No pain, takes 30-45 minutes. The first test showed my EF at 27%.  Shortness of breath, exhaustion, the whole "nine yards."  Ultimately installed a pacemaker/defibrilator and put me on a slew of meds.  Last echo showed EF at 40%. I'm still excersise-challenged... I don't do much. 

    Do the echocardiogram, doctor's recommendations, moderate excersise, take all meds as prescribed.  "Heart failure" is no longer a death-sentence.

  • marshamd59
    marshamd59, June 2,  2020  11:30am EST

    Dear DG2020,

    Welcome to the support network. It is scary when you first get your diagnosis and start this journey and it's different for everyone. First off, give the meds time to work. It can take a while to get acclimated to them. The majority of the time they work great and with lifestyle changes, if any are needed, it's amazing how our hearts can keep going and lots of times get stronger. Follow your drs orders about diet and exercise. I listen to my body. Some days I feel up to exercise and others I don't. I would recommend asking you doctor about cardiac rehab. All things in time though. For now I would say gather information, see what the ECHO results are and how your body reacts to the meds. Try not to ask too many "what if" questions right now. I was diagnosed in 2005 and even recovered for several years. There are lots of wonderful meds, technologies and so much more for heart patients these days. Most important is to get a good medical team in your corner and a good support team at home or here or both. Try to keep a positive outlook. You'll have good days and bad ones, and that's normal and okay! We are here for you. Let us know what you find out from your ECHO. 

    Wishing you all the best!

    Michelle. 💖

  • DG2020
    DG2020, June 22,  2020  10:09am EST

    This is such a wonderful forum. I should be on here more. I really appreciate all of you and your suggestions and comments! Thank you! Today is the day of my echo results. I havent done much to change my lifestyle, now that the day is here I wish I would have. I am happy to hear that it is no longer a 'death sentence', that is how I have been feeling about it. Depressed. I am happy to share the results here with you. Thank you for that! What is a defibrillator?

  • eddiepullin
    eddiepullin, June 22,  2020  10:51am EST

    Hi DG2020, 

    a defibrillator is installed to shock your heart if it stops. 
    I hope you're results are good one's, good luck!

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