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THeil, September 28,  2020  1:51pm EST

AV Node Ablation

I had a titanium Mitral Valve implated w/septal myectomy in Oct 2018. I went into aFib right after the surgery which was expected and was cardioverted in Feb of 2019. Just a week ago I had t be cardioverted again because I went into aFib. It was recommended that I consider an AV Node ablation with a pacemaker. I already have an ICD w/pacemaker. I have been reading alot of pros and cons about the procedure. Has anyone had this done and how are you dealing with it. I understand that many go into aFib after the procedure and really don't come out of it. I seem to go into aFib about every 16 months. I have had a cryo ablation prior to the surgery. Let me add that I am on Sotalol. It seemed to be controlling things. I am hestitant to say the lease.

3 Replies
  • AHAASAKatie
    AHAASAKatie, September 29,  2020  8:37am EST

    Good morning, I am so sorry that you are having to deal with such a complicated situation. I can share what we have in regards to Lifestyle strategies for people with AFIB. I have also reached out to our AFIB community and our Heart Valve community to see if we have members with similar experiences who can help support you.

    Please know that we are here, every step of the way. 

    Best Katie

  • AmbassadorB
    AmbassadorB, September 29,  2020  4:37pm EST


    My experience  with this "Cardio World" that we live in is to be alert for changes and unusual experiences involving any and all aspects of cardio performance.   Like many, I have had my share of procedures and medical "work" and also have an ICD that  is coming due for replacement.   The most important relationship, of course, that I have ,  is with my Cardiologist and his team.   I have confidence in their ability and experience, and particularly in applying their knowledge and expertise to my own case.   Not procrastinating in alerting this team to any changes in my health has been perhaps the most important lesson I've learned.  I also have learned to understand and accept their planned action - relative to my well-being.  So ?

    Put your trust in your cardio team.  Let them know your concerns and questions about any planned procedure and know that their goal is your well-being!   

    All the best!

    Ambassador B


  • AmbassadorC
    AmbassadorC, September 29,  2020  9:24pm EST

    Welcome, THeil to the support network. You are among a community of heart warriors who can relate as heart patients all of the concerns you have expressed. While our indivual journeys may be different, we are all connected and share the same heartbeat, one beat at a time. I truly understand your concern about the a fib. My journey involves postsurgical a fib as well as a flutter with in 3 to 4 months of my open heart surgery to repair my leaking mitral valve. I had been cardio verted 3 times and then ablated within that 4 month post surgical recovery. 
    I echo the remarks of my fellow Ambassdor B. Re establishing a relationship with your cardiologist and team to get through this this difficult time. What I rember most about this segment of my journey is that you need to be your own advocate. If something does not feel right, do not be afraid to get a second opinion. You need to feel comfortable with all your questions answered and your proposed plan. Please do not hesitate to share your fears of the what if's as you need to feel confident with the professionals who will be treating you. 

    PLEASE feel free to reach out to us, as we welcome you with heart❣️  AND are here for you. 

    With heart, 

    Ambassador C 

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