Cardiomyopathy
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Diagnosed with ARVD
Hello, my name is Gary Beatty, and I am new to this group. I havn't figured out the navigation of this sight down yet, but wanted to share my story, since everything I have seen so far has been both educational as well as uplifting from an emotional...
read morelatest replyNewPacer73, June 9, 2019 8:50pm EST
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Heart transplant
My 29 yr old daughter is currently awaiting transplant, listed at 4. She was told in March that she had acute dilated cardiomyopathy. Her LEV is less than 10%, output is 1.1 liters, with regurgitation into lungs, & double gallop present visible...
read morelatest replyShellangel70, July 19, 2019 8:50pm EST
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Cardiomyopathy, Heart Failure, 28 years old
Hello all! I was diagnosed with cardiomyopathy about 3 months ago. My EF was 19% in the hospital, I had shortness of breath for weeks (due to pneumonia at first). I wasn’t eating, sleeping, just kind of muddling through it for 3-4 weeks....
read morelatest replyvikingheart, August 12, 2019 3:12pm EST
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Please Keep Sharing!
There have been so many wonderful conversations on the Support Network these last few weeks. New and returning members sharing what is happening in their world! We wanted to recognize you, say thank you and encourage you to keep inspiring each other! Best...
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Cardiomyopathy, BP - thoughts?
Hello! I am new to this and still working on how to navigate the site. I have been reading posts of what my spouse was recently diagnosed with - DCM with low EF. Your stories have been a beacon of hope in this scary time. I was just womdering...
read morelatest replyMemorare, May 23, 2019 10:56pm EST
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Anybody know how to read this?
M-Mode/2D Measurements & Calculations LV Diastolic Dimension: LV Systolic Dimension: LA Dimension: 4 cmAO Root 5.01 cm 2.23 cm Dimension: 3.1 cm LV PW Diastolic: 1.12 cm LV Volume Diastolic: 145 Septum Diastolic: 1.44 ml cm LV Volume Systolic:...
read morelatest replyAHAASAKatie, May 15, 2019 8:23am EST
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The Smart Searcher: A Guide to Online Medical Advice and the Support Network
Good morning everyone, I am so excited to see our community growing these last few months. And, I have read some powerful, supportive and educational conversation threads. I do need to provide a reminder that it is imperative to the safety of...
read morelatest replymarshamd59, May 6, 2019 9:09am EST
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- 9 replies
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Alcohol and Cardiomyopathy
This is my first post and I am posting as I read this forum when I first was diagnosed last year and it helped immensely to read the positive posts and also the story of other people’s experiences as I tried to find out information that was similar...
read morelatest replyrmjoswick10, May 8, 2019 9:08pm EST
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HOCM and Acquired Von Wildebrand
I’m new to this group so I apologize if this question has previously been asked. I was diagnosed with HOCM 8 years ago. I’ve also been diagnosed with acquired Von Wildebrand, a bleeding disorder. It’s my understanding the HOCM caused...
read morelatest replyMspolland, May 28, 2019 12:44pm EST
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- 11 replies
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Cardiomyopathy
Hello Everyone! Has anyone been diagnosed with Dilated Cardiomyopathy? I'm new with this and very confused. What type of doctor do you follow up with for medications. After my cath test , the cardiologist that performed it gave me my diagnosed and...
read morelatest replyMemorare, May 20, 2019 11:25pm EST
