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Unsuccessful ablation leading to possibility of Pacemaker
Just looking for anyone who may suffer from a challenging case of SVT/ AVNRT - medications don't work, ablations unsuccessful and pacemaker being considered next? Does anyone with SVT/AVNRT have a pacemaker- did it help? Anyone? I'm at a loss.
TessC, August 21, 2020 5:37pm EST
I have read the posts of several people who have had pacemakers installed, so they may come on soon and see your message. Sorry I cannot help, but I understand your challenges and hope you will find relief from your issues soon. Are you on Facebook? There are other support groups as well, but this is the best one for medical information. There are links you can view, Here's one I got a search for pacemakers: https://supportnetwork.heart.org/search/?query=pacemaker
NewPacer73, August 27, 2020 6:27am EST
For me, the pacemaker has been a huge gift. When I first had it installed last June, I could not comprehend how it could help. This pacemaker is smaller than you would imagine and the battery lasts ten years. Pacemakers are changing often and getting better constantly. I frankly didn't believe in the pacemaker in the beginning. What did I learn? If I have symptoms, I send data in from the monitor and let them know via the patient portal that I sent in data. Within hours, they call back to tell me what's going on. Initially, we needed to adjust some meds. Later, I learned the pacemaker was picking up small arrythymias that converted themselves. It's a chicken and egg thing. I believe, for me, knowing this thing is monitoring me 24 x 7 has allowed me to relax more. I see as time passes how responsive the pacemaker clinic is and now, by relaxing more because I know I'm being monitored, I have fewer episodes. It has saved me numerous visits to doctors or ERs. I feel confident. I have a pacemaker clinic in the same offices as the cardiologist, who gets reports on what is going on. So, with meds adjusted and knowing that, as I relax more, I have very few incidences I'm so safe now. My pacemaker has a ten year battery. During the year, they do a virtual check by getting the data from the pacemaker over time. No doctor's visit. I see the pacemaker doctor once a year in person who checks that wires are in place, the battery power left and the data. I was very puzzled and skeptical initially about a pacemaker. Now I don't remember I have it at all. It's a great doctor in your chest thing.When you feel weird, just let them know, send in the data by pushing one button on the monitor, and you will know in short time what's going on. It's amazing. I love my pacemaker. Probably should've had it put in sooner. By the way, the installation takes a couple of weeks to totally heal (something they make you come in to check initially). Then you'll forget it's there, except when you feel something is up and that is quickly and thoroughly checked. I have learned so much from my pacemaker. One thing is episodes are fewer because I worry a lot less.
NewPacer73, August 27, 2020 6:44am EST
Forgot one other benefit. I passed out in February and was taken into the hospital ER. Surely it was my heart? No. Despite having the flu shot, I had Type A H1N1 flu. During my stay as an admitted patient, due to my cardiac history, they checked pacemaker data. They pass a wand connected to a computer over your pacemaker location, gather data, and there was no cardiac connection to the passing out episode. Huge relief. Huge. So the pacemaker will be checked when you need ER or inpatient services because it's there. Amazing.
celiav, August 27, 2020 8:16pm EST
I'm sorry to hear you're struggling. I had a difficult case of AVNRT. Couldn't induce it more than once out of 5 procedures, yet all my ECGs still showed the reentrant abnormal rhythm. Since they had already induced it in the past with precise mapping and I still had evidence of it, they continued to ablate the area where my pathways were located. However, after 5 ablations, I am still having SVT daily (although shorter, still up to 275 bpm). Episodes returned after about a month post ablations. They think I've had a second arrhythmia occuring this whole time. At this point they're thinking either a weird atrial tachycardia or a rare second AVNRT because typically AVNRT has a VERY high success rate and it wouldn't make sense to still have the original one after so many ablations. Are they positive you still AVNRT? Could it be a second arrhythmia that is mimicking it? The only reason I mention this is because a pacemaker does not resolve SVT unless your entire AV node is ablated, which most doctors do not go ahead in doing. Everyone is different, but that is at least what my doctor has told me. My age (21) could also be a factor in why they wouldn't consider a pacemaker. I have had multiple medication trials as well with them either not working or bad side effects.