marshamd59
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marshamd59, July 14,  2019  9:31am EST

Struggling

I’m in yet another struggle with AFib and feeling discouraged. I feel blessed I’ve been in normal SR for about a year and a half since my ablation. It’s just especially discouraging since we are away from home serving a mission for our church, something I’ve wanted to do for a long time. I’m uncomfortable going to a different hospital and different doctors. My doctor at home has been adjusting my meds trying to get me back to normal SR, but if it doesn’t work in the next few days I’ve got to find a hospital to cardio convert me. In the meantime my symptoms have been rough. Trying to suffer through them because I really don’t want to go to a strange hospital. Keep me in your prayers please. Thanks so much, it helps just to vent your feelings sometimes and I know you all understand. 

Wishing everyone the very best!

Michelle

7 Replies
  • NewPacer73
    NewPacer73, July 14,  2019  12:33pm EST

    Where are you on your mission? My nephew has been on missions in Brazil so I don't know if that's the case with you. Do you have a lot of time left to be out of pocket? Afib is a horrible feeling. For me, it seems the stress of knowing I had it increased the number of episodes I was having. My brother had Afib a lot after ablation but he's in SR now.. I was lucky and ablation worked permanantly. I think it's okay to go to a new hospital for cardioversion if you have confidence in that hospital. If you doubt their ability (it's routine procedure usually), then I think you have a decision to make about whether or not go go home and get treated. How frustrating it's gotta be to be doing something you are passionate about and dumb Afib gets in your way. If you have confidence that the nearby hospital is capable (your cardiologist can tell you that) then go and do it would be my recommendation. Hugs.

  • TessC
    TessC, July 14,  2019  3:42pm EST

    Sorry this has happened during your mission work. It sounds like you are getting advice from your doctor at home and his suggesiont sounds good. A competent cardiologist in any major city hospital should be able to convert you safely. It was paramedics in the back of an ambulance who converted me. I know it helps to relate your concerns and fears with others who understand and I hope it makes you feel better to know we care. Good luck!

  • AHAASAKatie
    AHAASAKatie, July 15,  2019  10:17am EST

    HI Michelle, we have an international arm of the AHA. If you decide that you need medical treatment outside the U.S., please email me at SupportNetwork@heart.org. I am not sure we can help you, but I am happy to try. Best Katie

  • Willy9870
    Willy9870, July 17,  2019  7:26pm EST

    Prayers are with you. I just had a heart ablation 3 weeks ago but still having afib daily. I feel so bad at times. They say it will get better but I dont know. I still think my stomach affects my afib. Hope you get to feeling better soon. Take care.

  • marshamd59
    marshamd59, July 17,  2019  7:42pm EST

    Thanks so much everyone for your encouraging words. I ended up in the hospital, but I’m doing much better. I wish each of you the best in your struggles. Enjoy those good days with everything you have! 

    Heart strong! ❤️

     

  • NewPacer73
    NewPacer73, July 17,  2019  7:57pm EST

    @Willy9870, I KNOW my digestive problems and arrythmias are connected. They have things to try to help. Don't get discouraged. Afib is a real pain to deal with but even my Afib for years brother has finally gotten it resolved. Took all kinds of tries for him.  As a suggesiton, although this seems harder to get nailed down, I would pursue gastro tests to see if your stomach can calm down somehow. There's a iot of emotional stuff connected when you are having cardiac symptoms. Keep writing on this blog to keep me updated on how you are doing. As I explore connecting the dots for gastro issues and cardiac issues, I promise to let you know what I find out. You are definitely "normal" in cardiac land with your concerns. Keep on fighting for a better quality of life for whatever time we have left. I keep pounding them with questions. Recently, some hospital gastro doc was looking at me like a somewhat crazy old lady.  He ordered an ultra sound of my upper abdomen and found nothing. The next day in the hosptial, I suddenly pitched a dangerously high fever. I loved it when the gastro guy ordered a CT scan and found two infections. He came into my room and said, "You are a surprise case for me after many years of practice." I said I knew I was sick, hence going to the ER. I told him it may be a great lesson learned for both of us. We need to "team up" and neither one of us needs to cave in without trying everything.  Same with Afib. Go get 'em. smile

  • Devoep
    Devoep, August 4,  2019  4:34am EST

    I think now that the art of ablation and wireless communication with doctors connecting around the world, that taking care of this rather than waiting may be something that you consider early. I was scared to let days go by and was scared to sleep as well until I took care of my situation. I am in my sixties but do not think that my A-fib just started. I didn’t drink or smoke, try to take care of my body, vitamins, rest and the normal stress. I was sent straight to the EP and they got right down to the business of the procedure as one mate called it earlier in another post rather than saying surgery. I had told everyone that I had surgery. They did put me to sleep for this procedure. I was scared like it was a surgery, but call it as you may. My heart rate soared to around 200 bpm, l did not track how long it stayed. I just think that went the dizziness and shortness of breath were over, it was over. There is a book out there as well as I do also suggest the seminars Get in Rhythm that is held in Dallas. The book is on Amazon (My Black Heart). A short read, but in the perspective of the patient from diagnosing to surgery to recovery with the actual surgery reports, lab readings, test result, emotional counseling, and testimony. Encouragement with the drama throughout the book for those that need encouragement along the way and insight into the future. It should help with some future decisions that you will have to make. Also, for anyone else on the forum, for some comparisons of treatments, and to let you know that you are not alone in this journey. I understand the pain, fears, and uncertainty. May you feel better my friends after you read the book. My Black Heart subtitle: My Ablation Surgery

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