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Anyone else out there suffering thousands of PVCs a day? My last holter was in June 2018, and it showed around 3,000 per day. My echo showed MVP with moderate regurgitation and borderline left atrial enlargement. The PVCs have gotten a lot worse in the last few months, and I'm guessing I'm having 5,000-10,000 per day. I'm scheduled for another holter/echo soon. It's hard to believe my EP when he says these PVCs are benign. I note that the character of my PVCs seem to change. First I would only have the during the day, and never at night. Now they are disrupting my sleep. Previously, they would come in a bigeminy pattern, but now they are coming at irregular intervals, which actually feels worse. I can't help thinking maybe something else has happened since June to cause the PVCs to worsen and change character. It seems like I can't think of anything else!!!
AHAASAKatie, January 29, 2019 8:35am EST
I am so sorry to hear that you are having to experience this. When is the next holter/echo and have you talked about next steps with your EP? Best, Katie
marshamd59, January 29, 2019 10:47am EST
I’m so sorry for your struggle with PVCs. I also have them and I know how bothersome they can be. I seem to feel mine the worse during the night, but will have bad days sometimes also. Yours sound a lot worse though. If they’ve gotten significantly worse hopefully they can do something to get you some relief after your next halter/echo. Especially with your other heart issues. My EP is watching mine, but said if they get worse it’s just a matter of adding another lead to my pacemaker to redirect the current. Maybe you could discuss pacemaker with your EP the next time to see him.
Wishing you the best!
AmbassadorDN, January 29, 2019 11:50am EST
I'm so sorry you are dealing with all the PVCs! I'm a lifelong PVC sufferer myself, and I can completely empathize with not only the sensation of feeling constant PVCs, but also the frustration.
To be honest, and I speak from experience, you may be experiencing mitral valve failure. Not to alarm you--this doesn't mean that your valve will just quit working--but rather that it seems a serious conversation with your cardiologist is in order. It may be time to consider heart valve surgery. In my case, my PVCs worsened as my valve began to get worse.
The fact that you have 1) moderate regurgitation; 2) left atrial enlargement is concerning. You may not be as symptomatic as one may think when it comes time to consider valve surgery (shortness of breath, fatigue, etc.), but I encourage you anyway to speak with your cardiologist, and if need be, speak with a trusted, experienced surgeon. Oftentimes, cardiologists themselves tend to be quite conservative in their assessments and therefore are reluctant to send their patients to surgery while surgeons tend to want to get in and repair or replace valves before damage is done to the heart. Your PVCs, because you are having 5,000-10,000 a day can certainly not be benign. From what my EP says, too many PVCs over too long a time can lead to heart failure. Right now, my PVCs, according to my most recent 72-hour Holter, were about 6,000 a day. Not bad, but not good either.
Know that we are all here for you, and feel free to ask any questions that may arise as well as to keep us posted! Also, feel free to visit the Heart Valve Disease forum for information on Heart Valves. Also, here is a link to information on heart valve disease, as well as a short video about my fellow ambassador Ray's experiences: https://www.heart.org/en/health-topics/heart-valve-problems-and-disease/heart-valve-disease-resources
To Heart and Soul Health,