mdudek37
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mdudek37, January 26,  2019  3:18pm EST

Junctional Rhythm and AVNRT

I am new and have been struggling to find anyone with the same issues I have that I can really relate to. 

I was told for decades that I have ventricular tachycardia.  Over the past 20 years, the episodes became more frequent and longer lasting.  Last November, I felt like my heart broke;  I was in constant tachy for three days.  Nothing I did helped control it.  Met with the cardiologist and he said I had AVNRT and sent me to The Electrician who said the best course of action would be a cardiac ablation. 

I had my ablation on January 15.  He had told my husband that before he even started, I was in junctional rhythm.  He made about 20 burns for the AVNRT but said he had to stop because he was getting too close to the AV node; if he went any further he may have damaged or destroyed it.  I got the feeling from him that the next step is a pacemaker.

The day after my surgery, I felt horrible and had many episodes.  He doubled my dose of Flecainide from 50mg to 100mg twice daily.  I definitely feel worse than before I had the ablation.  I still have multiple episodes a day and sometimes it makes my chest hurt, which never happened before.  I also have more episodes of pre-syncope.

Questions I have are:
- Could he not tell by the EKGs that I had JR?
- What are the correlations, if any, between AVNRT and JR?
- I know that SVT/AVNRT are very common, but is it common to have AVRNT and JR?
- Do I get JR every time I have an episode of AVNRT or do I get AVNRT in response to JR? (Chicken and egg thing?)
- I know I still have time to heal but am I still getting episodes because he couldn't get all the spots that he wanted?
- Do I "go into" JR or am I always in that state?

Thank you in advance.
 

4 Replies
  • AHAASAKatie
    AHAASAKatie, January 29,  2019  8:45am EST

    Good morning, I am so sorry that this has been your experience.  Interpreting the results of the tests leans more towards diagnosing and something our members really cannot do. However, I am sure those that have had an ablation can share their experiences with you. Did you ask your EP and if you did and were not satisfied with the answers would you consider a second opinion? I can also share the information we have regarding the Ablation procedure. Katie 

  • marshamd59
    marshamd59, January 29,  2019  11:01am EST

    Hi Mdudek, 

    You ask a lot of good questions which I don’t have the answers to, but I have had an ablation and can tell you it does take 3 months or more to fully recover. I felt like I had been kicked in the chest by a horse after my ablation. My chest/heart was very sore and painful for several weeks afterwards. I was still having a lot of  AFIB afterwards, but I’m a year out from mine and it’s completely gone although I do have PVCs that feel similar but the symptoms aren’t as severe. I also have a pacemaker/defibrillator which may be the next step for you and is a much easier procedure than ablation. My advice would just be to give it some time and see where you’re at in a few months. Hopefully you’ll get some relief by then. Hoping the best for you and keep us updated. 

    Take care,

    Michelle

  • mdudek37
    mdudek37, February 3,  2019  10:39am EST

    Thank you, Katie.  I have my follow up/post-ablation appointment next week.  I am bringing all my questions to my EP.  He did tell me that a pacemaker may be in my future.  I finally got the notes from the procedure which explains some things and brings up other questions.  I am still going to seek a second opinion.  I was able to find just one person who also have SVT and JR that I could connect with.  I selfishly wish there were more but at the same time don't wish it on anyone!

  • DolphinWrite
    DolphinWrite, February 7,  2019  1:59pm EST

    Ekgs, from what my primary doctor explained, only tells whst''s happening at the time it''s given. 

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