WINTER
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WINTER, January 18,  2019  10:06pm EST
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Brand Spankin' New PaceMaker

Hello folks! I've finally found a Support Forum, yeah! 

I had my Pacemaker installed 10 5.2018. Its been 3 months and trying to understand my new normal .You dont get told much in the way of emotional support and even the Education of Bradycardia, Long QT and Torsades is very limited in the hospital.

I'm 58 and went into the hospital for unknown issues with my heart. The diagnosed  conditions may have been caused by 1 of 2  long term medications. NOT congenital. 

 

In just a wkend blur, the potential to have been a fatal event was very real. The implications of that are still shocking and raw  . I am however forever greatful to the ' powers that be' and Dr 's with mad skills. 

It took awhile upon returning home to trust the process and believe that I wasn't going to die.

3 months later and I'm having sporadic episodes of 100+ resting HR. And a few monitor alerts on my Device Monitor of V 192.

I'm not sure what that means . I've googled till I'm blue in the face . The device clinic doesn't elaborate.  Can anyone explain a V rate ? And what one of 192 means? 

Thanks for being here and the best of health to you all in 2019.❤

 

4 Replies
  • AHAASAKatie
    AHAASAKatie, January 22,  2019  8:12am EST

    Hi Winter and welcome to the Support Network! I am not sure what a V rate is and will ask our science/research folks and get back to you. I am also curious to see what other members have to say. Did you ask your doctor's office? They may be able to help you as well. Thanks Katie 

  • marshamd59
    marshamd59, January 22,  2019  10:05am EST

    Hi Winter, 

    Welcome and congrats on your brand new pacemaker. Question, is it a dual that also contains a defibrillator? My best guess would be that V rate is ventricular tachycardia and 192 would be your heart rate, BUT this is only a guess. With that said I totally agree with Katie that you should talk to your EP’s office right away and set up an appt. I’m assuming you’ve been following up with them. When was your last pacemaker check? I know when I first got my mine I was in their office every few months getting it checked by my EP’s pacemaker assistant. I hope you can get some answers soon. Take care and keep us updated. 

    Michelle

  • AHAASAKatie
    AHAASAKatie, January 22,  2019  11:03am EST

    And the answer is-V -rate is ventricular rate… and you should speak with your MD or other healthcare provider about what it means to have a rate as high as 192. Please do so and let us know how things go. Best Katie 

  • Angel1969
    Angel1969, February 12,  2019  6:55pm EST
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    You got me??? I am having a really understanding too all of this is new to me. Even though it’s been about 4 years since my difribulator was installed. I actually died on my livingroom floor in front of my four children for 4 minutes exactly. I only know this because on the next ambulance visit to my home; the paramedic told me so. I always think of a million questions when I leave the doctors office. Like now they say I have PVD. Won’t the difribulator stop any heart attack. And how am I supposed to exiercise when my legs hurt so bad. This has also caused extreme edema. I am only 50 years old but literally this is all exhausting. Here’s to questions without answers.

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