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Hi, I am wondering if anyone has had similar issues and can help me with investigation options, I'm at a bit of a loss. Firstly I do have a GI condition called Gastroparesis which is caused by damage to the vagus nerve. I've also had a low heart rate for as long as I can remember. It's usually early 50s or 40s asleep. Then I go through periods where it gets much lower. It usually lasts a few days and picks up again. Then about a year ago it stopped and I sat mostly around the 50s even at sleep. About 2 months ago it started going lower and just keeps getting lower. This week I've been in the early 40s sat still, or even standing at my desk. I get to mid 30s asleep now. I am seeing a cardiologist and have had an echo, stress test and ekg and nothing is showing. It's slow but that's it. I'm starting to be dizzy and fatigued all the time and I get so cold. We are trying some medication but it doesn't seem to hAve done much at all. I'm nervous about it continuing to lower and the fact we are not finding a cause. I just wondered if anyone had been through a similar situation and could offer advice. For the record although I'm somewhat active with walking, I am overweight and certainly no athlete!
AHAModerator, May 18, 2021 8:49am EST
Thank you for joining the Support Network and sharing your story. We are happy that you are here and hope you find the support you need. Unfortunately, I can't offer any medical advice but as you wait for others to reply I can share some resources with you that might help. Here are some resources on Symptoms, Diagnosis, and Monitoring of Arrhythmia, Bradycardia, Walking, and Staying Motivated. We hope you feel better and get some answers soon.
Please keep us updated on how you are doing!
NewPacer73, June 5, 2021 10:31am EST
I have bradycardia. I can't comment on the gastro stuff. But, with bradycardia, it's important to keep records of your BP and your heartrate (I use an oximeter (finger), so I can report oxygen levels too) and report those numbers to your cardiologist. I use the patient portal to report data in. I am pretty old and was passing out, so this might be why the plan for me was to get a pacemaker installed that when my heartrate is below 60, it paces my heart back to that level. If you are getting symptoms with it, like dizzy and fatigue, it might be time to take action. I want to share with you something that might not be applicable to you personally. When I felt like I wasn't getting my cardiologist to understand my concerns, I asked around and switched cardiologist and am lucky to now have a totally connected cardio who is super responsive. My bradycardia got worse and she's the reason I have such a good quality of life. It's worth considering asking your friends and family if they know of a cardiologist they feel is worthy of at least a second opinion. I now have a lead cardiologist, a pacemaker cardiologist both in the same office. If I ever feel symptoms, a rare event now, I hit a button on the pacemaker monitor and send in data. They report back what the data tells them and it's usually a brief afib or bradycardia totally handled within seconds by the pacemaker. What that does for me is give me confidence I am okay now. Also, I would hope they put you on a monitor for several weeks to record exactly what your heart is doing. That data will help them figure out just how often your heart slows down and if it's dangerous. Stay as active as you safely can (another question I asked was about how much to exercise) because we all want to do to stay healthy. I do walking tapes from youtube that I started during the pandemic. Bradycardia is tricky. The first step I would take is get a second opinion on this issue from another cardiologist so you can plan your best approach to feeling safe and less anxious. Keep us posted on how you are doing. This is a good place to find people who have been there, done that. I have a really good quality of life now. It takes awhile to assess cardiac issues. But they know so much more now and have so many options, it's an amazing time to deal with cardiac issues. Looking forward to your next update post.Sending cyber hugs and good wishes your way.