Lou15
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Lou15, August 16,  2019  3:44am EST

Anyone else been diagnosed with inappropriate sinus tachycardia

Hi , I’m just wondering if anyone here has been diagnosed with IST , ? I’ve been having terrible symptoms of increased heart rate , just when walking it can get 136 and sitting can be around 105 . I had an episode a month ago and 2 times it reached 167 

my cardiologist has taken me off beta blockers and trying me on coralan but I’m feeling very unsure about it all as I can be good one minute and then feel it come on or build up and feel like vomiting, shaking, breathless (alot) headaches, dizzy. 

When my heart goes fast from walking a few stairs I feel like I just ran up and down the street . And I get palpitations a lot. 

I feel like I’m not getting far with my drs as they all seem a bit clueless and just send me home with meds saying it will get better, mean while I cannot work or live like I use to.

can anyone relate to these symptoms or offer advice please x

5 Replies
  • Ralaz
    Ralaz, August 16,  2019  9:11am EST

    Have you tried seeing an Electrophysiologist? They are specialists (Cardiologists) who deal with arrhythmias such as yours and they have special knowledge with the use of drugs and how they interact in managing arrhythmias. It is important that you are diagnosed correctly as arrhythmias can be misdiagnosed if you are not seeing a really good cardiologist.

  • Scoocoo
    Scoocoo, August 16,  2019  10:51am EST
    Before getting pacemaker year ago last week my pulse range was 49-53, occasionally as low as 38-39! Vigorous walking or weights workouts never took it higher than 72-75. Since adding the PM, never know what any exercise might cause. I'm writing this 15 minutes after returning from 40-minute walk on neighborhood streets, mostly fairly even but with enough ups and downs to build in some stress variety. So far I've cooled down to 76bpm from walk average 100, against normal resting rate 62. But sometimes merely walking normal pace from living room to nearby bath, it can hike up to mid 80s by time I sit down there. My cabin sits 23 uneven stone steps above the driveway. Some days, simply climbing that leaves me noticeably short of breathing and feeling like about to throw up. Others -- even God-awful HOT ones like past few -- I can make 2 or 3 grocery hauls with no worse after effects, sometimes not even those. Blood pressure monitoring never shows anything scary high around any of this.
    Summation: ZERO idea what it all means. Just do my twice yearly PM lab digital checkup, immediately followed by cardiologist exam. Almost 24 years since "mild" heart attack and subsequent 3 stents, then 2002 quadruple bypass. Considering Dad's side cardio hand I was dealt, consider myself extremely blessed to be alive at all -- much less with the unbelievable condition I'm still in as I near octogenarian status.
  • Lou15
    Lou15, August 16,  2019  7:35pm EST

    I definitely feel the way this article describes. I was misdiagnosed about two and half years ago with same symptoms and kept ending up in ER with high heart rate and all symptoms that come with it, they ended up telling me it was anxiety ( I knew it wasn’t, though it definitely created anxiety in me) eventually it settled down after a few months but lots of drs visits trying me on antidepressants and anti anxiety meds. But over those 2 years I did have a few episodes and lots of night time episodes that I kept putting down to anxiety or nothing. 

    A month ago it all started again while I was at work , I’d been getting headspins and breathless for the two weeks leading up to the event and then I passed out at work and have had many episodes since. Only last night I was continuously awoken with heart rate around 140 . My cardiologist really has given me nothing except yes it’s IST a drug for anxiety and to slow heart rate down and he said I believe in 3 months you will be back to your normal self . Like seriously 😒 

    Now I’m such an emotional mess as now I have to find a cardiologist who will take me seriously and stop having these episodes , I cannot have a life atm , I cannot work etc because as soon as I exert myself up goes my heart rate and I’m breathless.

  • Woink1000
    Woink1000, September 2,  2019  2:25pm EST

    Hello.

    i am a 33 year old woman and I have stupid heart stuff too.

    last year in January 2018 I was at work and all of a sudden I started getting very fast pvcs coming in, they were out of control and the more I panicked, the worse they got.

    i also felt my heart rate go very high, which wasn’t unusual for me as I am a panicked person a lot of the time.

    i ended up in the emergency room several times within a few days, as the pvcs and high heart rate wouldn’t subside.

    i got evaluated by doctors that told me I was under stress and to calm down, it’s just anxiety.

    well, I know my own body and this wasn’t anxiety!!!

    so a few weeks went by and this kept happening, pvcs continually, and the fast heart rate was extremely noticeable after eating, which was strange.

    i ended up getting put into a beta blocker, propranolol, to help me when I ate, as it kept my heart rate down enough for me not to panic.

    i needed up in the ambulance several times within a few months with my heart rate over 170 and very frequent pvcs.

    the hospital doctors, booked me into the cardiologist and from there I got ever test done over the next few months.

    adjusting my beta blockers and doing treadmill tests. Checking for POTS, as my heart rate was elevated a lot upon general walking and standing.

    many lost nights of no sleep with worry, wanting to end my life because these symptoms came on very abruptly for no reason, and don’t go away very quickly.

    so here we are at present day September 2019.

    still living with these stupid episodes of high heart rate every no and then, and occasionally getting pvcs.

    i saw an electrotheripist, and he put me on 80mg of propranolol morning and night, and 100mg of flecinide, morning and night.

    boy has it help, but like right now, I’m panicking a little because I woke up with a fast heart rate for no reason.

    my point is, yes this sucks, and I am diagnosed with inappropriate sinus tachycardia and frequent pvcs.

    but it does get easier, most days when I know it’s coming on, I splash very cold water on my face, breath in, gold my breathe for 10 seconds and relsese, it makes the vagus nerve calm down and help lower the heart rate.

    i feel these espsodes coming and try to prepare myself, but it sucks when you can feel you heart pound and your heart rate shoot up.

    it does get easier, try not to let this bother you, ignore it the best you can, that’s what I do as panicking makes it 100 times worse.

    as the cardiologist told me, there is no reason why my heart decides to beat fast for no reason, thats why it’s inappropriate.

    you will feel better soon, I live with this everyday, and it won’t kill you.

    its just something that our hearts do for no reason.

     

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