• 13 replies
  • 11 followings
Heartfe6878, April 27,  2018  11:46am EST

Current topic on posting on site

Life is about change......But the tremendous change that has happened on this site is extremely difficult to use and follow . I believe that the people who have posted recently have a very valid point and this needs to be adressed and fixed. I am saddened to see that this support network has become such a source of stress to all the people participating by useing it. It is simply what works sometimes does not need to be changed....The community is a broad spectrum of ages.. I still beliee that this needs to be simplified for all users abilities........

  • barbara1642
    barbara1642, May 2,  2018  5:43am EST

    Just my nickles' worth:  (inflation, you know).....

    Do you think that the replies could be posted in chronological order?  I'm getting the newest first, which confuses this poor old brain of mine.

    Otherwise, as I've heard here:  When you log in, click on "Take me to my condition" or whatever it's called.  And there you are.  


  • MellanieSAF
    MellanieSAF, April 28,  2018  11:12am EST
    Your Dashboard.JPG.

    A few tips I have learned in navigating the forum:

    1) When you receive the digest, if you login to the site immediately, you should be able to do everything, including Reply, in a single 60-minute session without logging in again. The timeout will be changed to 24 hours (doesn't seem to be working yet). Sometimes, even the 60-minute timeout doesn't seem to be working and I have to log in multiple times, but Katie has all of this on her list for the vendor.  

    2) Easiest ways to get to the My AFib Experience forums (on the computer, not necessarily on a mobile device as I don't use one for this) is from "Your Dashboard" - there are two approaches:

    a) In the three folder tabs below the menu, click on "My AFib Experience" (3rd tab) to go to the My Afib Experience home page, then click on the Community Forums dropdown. 

    b) In the top box (Participate in the Conversation on Your Primary Condition), click on the red "Go to My Primary Condition Forum". That currently takes you to the Technical Issues forum, which is the top forum in the list, but I've emailed Katie today to swap the Introduce Yourself and Technical Issues forums in the list. That way, Introduce Yourself (which we are using as our main forum) will come up when you click that Primary Condition button. [She is not working this weekend, so will hopefully be able to swap them for us on Monday.]

    3) Use the "Activity Stream" on "Your Dashboard" throughout the day to see the most recent comments and most active threads in My AFib Experience.

    4) Go to the News Blog page to access all the instructions Katie has posted for personalizing what you see, making sure that you have set up Instant Notifications and selected the type of Digest you want and what you want to see in it. 

    I hope that these tips help relieve some of your frustrations in learning how to get around.


  • sgt173
    sgt173, April 28,  2018  10:33am EST

    My two cents worthon the new AFib forum:

    I agree with everyone else that is posting about the new format.Its too hard to get around on now and I am computer savy.Also I get tired of having to log in again in everytime I click on something.So far I see nothing that is better about the NEW Forum.I use it a lot less everyday now and I think most of the others are too or stopped trying and quit all together.What was so wrong with the old one?.It was so mush easier before to communicate with others and to even send a personal messege to someone that seems to have completely disappeared.Katie I'm sure you are probably trying everything to make it work better I dont think one on one is going to help many that come here just wanting to learn about theire new found problem AFib


  • MellanieSAF
    MellanieSAF, April 28,  2018  10:29am EST

    Patio, you said: "I have made my case before, and tried to be humorous or patient. It is clear, we are not to be listened to. Small things that would make this helpful like a thumbs up for those who view but have no real comment. "

    I am so sorry it feels like you are not being listened to, but that is not the case at all. We hear everything, and Katie collects it all up and puts in tickets for it to be done. If only I could wave a magic wand and have the changes instantly appear, that would be heavenly, but I don't have a magic wand!  

    Information Technology (IT) takes so many steps, with multiple organizations involved. Katie spends many hours every day wrangling all the different players, getting agreement to what may seem like minor changes but are not. On every call, multiple times per week, we work through details at a level of minutiae that you cannot even imagine defining exactly how each change will look and then how it can be programmed (and what impact it will have to the whole Support Network platform on which we reside). There are aha's for me every time we meet, and I spent many years in IT. We've been working through levels of detail for the digest changes that have been a total shock. Nothing is as easy as it would seem, which is why I keep asking for patience. 

    Please give us time to make the changes that are needed. I don't know how long it will take for the developers to address whether a "like" feature (which was my initial request) is possible to add because it is a nice to have feature and we are working on crucial items such as the Daily and Weekly Digests (sequence and content). 


  • AHAASAKatie
    AHAASAKatie, April 28,  2018  9:03am EST

    Lalabuddy, thank you for the kind words. I am happy to talk with any community member who wants a one-on-one conversation about how to use the updated platform. Best Katie

  • Lalabuddy
    Lalabuddy, April 28,  2018  8:09am EST


    You are so kind to offer help to us all. I know you are as frustrated as many of us.

    I am very computer savy so I am not confused. This site is a nightmare. The fact that it used to be so very easy and user friendly is what makes me sad. It reached so many people who needed support. We got to know and learned from each other. People were quick to post helpful information and advice. We were a community.  

    This is such a great community of folks with common issues. I sure hope something can be done quickly to remedy this situation or I fear this site will become extinct. That would be a real tragedy.

  • AHAASAKatie
    AHAASAKatie, April 28,  2018  7:58am EST

    Patio- I reviewed your notification selections and at this time, you have selected instant notifications of activity on the site and a weekly email digest. However, for the email digest, there is a menu of items that you can choose to select. If you access the Notifications tab you can update this information.  OR- if you prefer, let me know what you would like to have included in the digest I can set this up for you. Also, do you prefer to have a daily or weekly digest?

    As always, if a one-on-one conversation would help clear this issue, please email me at SupportNetwork@heart.org and we can set up a time to talk this coming week. 

    Best Katie 

  • AHAASAKatie
    AHAASAKatie, April 28,  2018  7:55am EST

    Good morning all, 

    I am so sorry that navigating the site continues to be a source of frustration. I would like to offer all of you, truly anyone who continues to have issues with navigation, the opportunity to talk with me one-on-one to identify the source of the confusion and get you on track. Please email me at SupportNetwork@heart.org and we set up a time next week that works for you. 

    Here is the link to Mellanie's post so you can read the original post and respond. 

    Thank you, Katie 



  • Lalabuddy
    Lalabuddy, April 28,  2018  7:53am EST

    This forum used to be a huge support for so many of us. Now, for me at least, it has just become too cumbersome and complicated to maneuver. I no longer recommend it to others. I feel like I've lost a friend.

  • TR
    TR, April 28,  2018  6:20am EST

    First, the first person I blame is myself for not not being able to navigate and understand this new site. I used to spend about thirty minutes reading and replying to posts on the old site, but ever since the change my enthusiasm has waned to the point where I spend about five minutes per day here. This morning, I read posts about people expressing their sorrow to Melanie for the loss of her sister, yet I cannot find the original post stating that this had happened. Then I read a post by Spencer about the medical records and was going to reply, but could not find a reply button. This was all so simple before we made this change, and I still rack my feeble brain trying to figure out one thing about the new site that is better than what we had.The last thing I like is to be a complainer, and I appreciate all the work that has gone into the new site. I readily accept blame for for not digging into this and figuring it out, because this site has been a very valuable tool for learning and appreciating what we are all going through, but I I just wish we could return to the simplicity that we once had.Again, it's my fault, but I just don't like this site anymore.


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