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debbiewade, April 29,  2018  3:03pm EST


I was diagnosed yesterday and was told that everytime I am in Afib I can throw a clot and have a stroke or heart attack!!  I am scared to death and need some reassurance and is there anything they can do to control them.  I don't have an appointment with my cardiologist until next week.  My PCP sent me to the ER.  I am afraid to move..

  • MarkN
    MarkN, May 1,  2018  4:27pm EST

    Well, I had undiagnosed A-Fib for probably 5 or more years before I got an official diagnosis.  Even then episodes were about 12 hours long a couple times a month.  My EP had a formula that he used to determine the risk with/without anti-coagulents and my risk was low-moderate.  Then, in 2013 I was diagnosed with Coronary Artery Disease, had a quadruple bypass and went into A-Fib during recovery, which is apparently quite common.  I was given Amioderone for a couple months after the surgery but the A-fib persisted at the same frequency. After two more years I opted for Xarelto even though it was potentially expensive and at that time didn't have an antidote.  In 2016 I had a mild heart attack and found out that two of the bypass arteries had failed.  My A-fib persists, usually at the same frequency but has gone as long as 3 months between episodes.  It's mildly debilitating at the onset but gets better as it goes along.  It's not changed my lifestyle much. I am a bit tired and lack energy when I have an episode but I try to keep a normal schedule and sleep pattern.  Most of my episodes occur at night while I'm asleep.   I have always exersized regularly, my weight is a bit high but manageable and I'm losing some a bit at a time, I eat OK, not perfectly but normally with an emphasis on plant based stuff. (I do still eat red meat, chicken, etc.)  I do what my GP/Cardiologist tell me to do and try to take care of myself, take responsibility for my health care and live life because it just keeps on going.

    Sometimes you just can't help the cards you are dealt and you have to learn that while it is very scary to have this it isn't a death sentence.  Blood thinners will mitigate your stroke risk which is most important from what I understand, you just have to be a little more mindful of risk.  So, the point of this discertation is just to let you know that you are not alone.  People live with this for years and years with no serious consequences. I'm no expert when it comes to A-Fib but I've lived with it for 10+ years and know the affect it can have. I also know that you can live a normal life with it.  Remember that it can control you if you let it or you can do what you can and control your own life.  Best of luck and keep your chin up.

  • NormaLou
    NormaLou, April 7,  2019  8:07pm EST

    I have had A-fib episodes since 2004. After the first one it was almost 2 years before I had another one. Then I started having one every 3-4 months. This went on for a couple years. Sometimes six months would pass without one. The episodes always lasted less than 12 hrs.

    Now, after 15 years they are happening more frequently and lasting a little longer but less than 24 hours that would make my taking a blood thinner necessary..

    In 2009 I had a pacemaker inserted due to bradycardia. My pm readings show that I am in A-fib only one percent. So that is a good thing. And my heart doesn't race during an episode... usually not higher than 85 bpm. Otherwise my cardio doc says my heart is in good  shape. So 



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