MJODRH
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MJODRH, March 6,  2020  7:35pm EST

Kidney transplant recipient with newly diagnosed AFib

Hello!  I am 49 years old and a few months ago I was diagnosed with AFib.  About a year and a half ago wore a Zio patch and the results came back as SVT.  My medication was chaged to Hydralazine for HBP and Metropolol.  At first I seemed to respond well but then the palpitations/irregular heartbeat would return.  My meds would be increased and wash, rinse, repeat on the effects.  As my palpitation seemed to get worse, more often and longer, the doctor did another Zio patch.  When the results came back it showed I had Afib and I received like 4 or 5 calls from doctors to work out getting me on an appropriate thinner and to an EP.  My medication was increased again with minimal if any improvement.  This journey I've been on has been very frustrating and scary as it seems no matter the treatment what they episodes just get worse.   What stated as just some random palpiation has turned into episodes every few days that will last for ~12 hours and almost always start in the evening or during the night.  These episodes make me feel tired, anxious, and just overal lethargic.  Also, it increases my urine output and can keep we awake with ongoing trips to the bathroom.  The increased uriniation truly bothers me as as it is dehydrating and I worry about additional stress on my kidney as I am a transplant patient (post transplant 31 years, YAY!).  The kidney transplant also makes antiarthymics not a good choice. 

I don't know where this new Afib journey is going to take me, but I can tell you that the emotional toll is feeling heavy right now.  I hope that by reading about people's experiences will help me to process better and enlighten me with ways to identify triggers and communicate with my cardiologist/EP.

Thanks for reading and thanks for sharing your experiences.

MJ

5 Replies
  • Thumper2
    Thumper2, March 7,  2020  7:45am EST

    MJ, welcome!   Have  you talked with your EP about having ablation(s)  to deal with your AFib?  If you have an EP who does many of these, successfully, you may be able to get rid of the worst features of AFib.  Ablations are procedures, not surgery, and often involve only an overnight stay in the hospital.  Also, check to see if you might have sleep apnea, which can lower the success rate of ablations.  Glad you're doing research on this whole issue.  Keep us posted!

    It's great that you've had a successful and long-lasting kidney transplant!

    Thumper2 (Judy)

  • dsavoie1953
    dsavoie1953, March 11,  2020  12:21pm EST

    AFIB at 65.CV-ECHO , ELECTROCARDO, REMOTE ECG Lab Reports are critical with a sound cardologist. If you you have a enlarged artium due to high blood pressure can cause AFIB. 

    I have been in AFIB for the first time on day 7. Going to see another cardologist. I also experience high blook pressure levels. Track with Karida.  I am reducing salt and sugar intake. My potassium and magnesium levels are fine. My Cholestral Total is 162 - Normal. My  LDL is 100 so slightly high as 1/20. But given the day the test was taken it is down from 108 on 8/19.. Range is 0-99 mg.dL.  I believe some folks with AFIB are taking magnesium. I read magnesium helps but how much? 

    I really noticed AFIB when I first drank two large beers at a Texas Roadhouse. I also notice drinking Rootbeer with a lot of sugar or caffiene. Studies show caffiene has not proven to be related. Bul alchol and for some reasons soft drinks with lots of sugar cause AFIB. Probabillty because of incraseas in blood pressure. 

    Working out daily and healthy life style (BMI reduction, no salt and low sugar) is the challenge facing us with AFIB. 

    Dennis

  • Thumper2
    Thumper2, March 12,  2020  8:46am EST

    Dennis, regarding magnesium, many folks take 200 mg/daily (i.e., two 100-gm pills, one in morning, one in evening).  Some take more.  Just be sure the magnesium is in a chelated form (e.g., Doctor's Best....), since the Mg oxides and  OTC Mg tend to either cause stomach distress or are not assimilated well by the body.   Others here may have additional advice.

    All the best,  Thumper2 (Judy)

  • dsavoie1953
    dsavoie1953, April 1,  2020  3:12pm EST

    Judy, 

    Trully appreciate your feedback. My cardologist did not think magnesium had any effect with my AFIB to normal Sinus. Today since March 15, 2020 to April 1 is the first time ever that I have a "persistant" AFIB eposide.

    My cardologist thinks Sleep Apena and high BMI are main causes.

    High Blood pressure caused Left Upper chamber to enlarge which in my case over a long period of time causes AFIB. I recently did not think I had high blood pressure for a long period of time. 

    I have to wait for a CT-Calcium Test and Thread Mill EV-ECHO Test in Dallas. At this point I have a high confidence level with my Cardo MD.

    Paleo Diet is not easy to reduce BMI but loosing slowly. NO process FOODS. LOW Carbs. 

    Dennis

     

  • Thumper2
    Thumper2, April 2,  2020  8:10am EST

    Dennis, as to the "cause" of AFib, most folks just don't know what caused it.  Neither my husband nor I know -- we have no family history of AFib on either side.  Neither of us is obese.  We don't drink, either alcohol or carbonated beverages.  We eat healthy.  My husband's blood pressure has always been low; mine was slightly high.  Neither of us has ever had elevated cholesterol levels.   What we do have is AGE!   As for sleep apnea, it's not clear that it causes AFib, but untreated sleep apnea may make it less likely that an ablation will be successful.

    Good for you for losing weight and ridding your diet of processed foods!  Keep us posted!

    Thumper2 (Judy)

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