Caseyken
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Caseyken, January 25,  2020  11:30am EST

Two Ablations later.......

Hi.. I hope this is not going to be long but here goes. I was rushed to ER on New Years of 2016 ( thoght I had a upper respitory infection). When they checked my heart, it was at 225,  then it would drop to 40, miss a couple of beats, go to a regular rythm and then start all over again. I was 47.  The only symptoms I have are chest pressure, light headness and I am tired all the time. In Sept of 2017, I had my first cardiac ablation. My cardiologist used cryotherapy on part of my heart and electro currents on other areas. This was unsuccesful. All this while I have been on Zorelto(injecting) and heart meds. I have not been thru menopause yet so the blood thinners were horrific for me during my period. I finally was able to stop blood thinners and just take a baby asprin daily. Meds were changed again, however I continued to have symptoms. I was admitted to the hospital again on October of 2018 for 3 days to try a new heart medication (tikosyn) which I currently take ever 12 hours along with a prescribed dosage of potassium. I was still symptomatic. We decided that another ablation may be the answer.  Cardiologist would go in and do a Mapping of my heart which is supposed to reroute the electrical currents. The outcome that we were going for was no AFIB and no medications. When I woke from procedure on the 15th of this month, I was told that because my Cardiologist was not able to put me into Afib, nothing was done. WHAT??!!!  I could not believe what I was hearing. I was told that multiple drugs were used to induce Afib, one I know was adrenaline. So I went home, sore from all the needles they put into me, discourgaged, and still in AFIB. I need some guidance... My heart was monitored prior to ablation and I am still going into AFIB while sleeping with all my medications. Heart rate was recorded at 198. How long can my heart sustain AFIB for? Are there other options? Will it get worse as I get older? I am following up this Wedensday and my plan is to request copies of my records and find another cardiologst. Any suggestions would be greatly appreciated!!!! Thank you!!!!

6 Replies
  • Joy61
    Joy61, January 25,  2020  11:38am EST

    I'm so sorry. That is terrible for you!! ❤️ Afib sucks (pardon me). 

  • Duchess
    Duchess, January 25,  2020  8:44pm EST

    So sorry to hear what a difficult time you're having . Is your cardiologist a EP?electrophysiologist if not find one and be sure he's a good one do your homework. Make sure he's done lots of oblations. A-fib does not seem to get better with age and sometimes more than one ablation is necessary.  your life can be a whole lot better, between medications ablations and a good EP your life will be better you need to talk to your doctor about your diet your exercise and be compliant with your medications good luck I'll keep you in my prayers. Keep us posted

    Duchess

  • Thumper2
    Thumper2, January 26,  2020  7:59am EST

    Caseyken, if you can afford to travel, go to the Cleveland Clinic cardiac section as your "second opinion."  They are world-famous.  Or, another EP of whom folks on this forum speak very highly is Dr. Andrea Natale -- I think his headquarters are in Texas, but he sometimes travels to other parts of the country to do ablations.  

    There are other options for treating AFib, but you would need to talk to specialists about them.  You are probably tired because your heart is beating unevenly.  Unfortunately, this is unlikely to get better on its own.  Have you been tested for sleep apnea?  This condition makes ablations less likely to be successful.  As Duchess mentioned, diet and exercise are important.  So is self-education -- one good source for that is the tapes of the last 2 or 3 years of the Heart group that meets in Texas each August, organized by Mellanie True Hills, and featuring well-known EPs from all over the country.  (Some of these tapes are free; for others there is a fee.)  We wish you all the best -- please keep us posted!

    Thumper2 (Judy)

  • Thumper2
    Thumper2, January 26,  2020  8:07am EST

    Caseyken, see Mellanie's story at  https://www.stopafib.org/mellanie.cfm.

    The name of the conference is "Get in Rhythm; Stay in Rhythm"

    Thumper2 (Judy)

  • Caseyken
    Caseyken, January 27,  2020  10:04am EST

    thank you for responding and your knowledge!!!

  • MellanieSAF
    MellanieSAF, January 27,  2020  10:15am EST

    Judy, Thanks for mentioning the conference.

    Caseyken, This year's conference will be July 17-19 at the Fairmont Hotel in Dallas, Texas. We are working on the web site and will open up registration soon. If you can possibly attend, you will find that it is invaluable and priceless information. I am working on teh faculty and agenda, having just gotten back last night from the annual AF Symposium. 

    In the meantime, here is how to access the most recent livestream replays from psat conferences:

     

    Mellanie

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