manijoao
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manijoao, September 16,  2019  8:04pm EST

Tachycardia after ablation

Hi had ablation done on September 10, been in the er twice since for tachycardia. First time it happened it went away after a few hours. Sotolol dose was raised to 80mg once and 40mg once daily. The second time I was switched over to amiodarone 400mg daily. Anyone have a similar experience?

  • Spencer
    Spencer, September 16,  2019  8:17pm EST

    After an ablation, there is sort of a 90 day try out your new heart before buying period.  During the time after your surgery, it will take some time for your heart to settle down from all of the intentional damage that was just done.   So most EPs will tell you to wait a good 90 days before saying the ablation was successful.   My heart went nuts after ablation one and two and didn't into a non-tachy, I'm about to kill you mode until the third ablation, 

    Don't worry!  Be Tachy!

    Spencer

    Waiting for my sunrise 

  • manijoao
    manijoao, September 16,  2019  8:54pm EST

    Hi spencer, thanks for the info, I'm sure everyone is different and some luckier than others with their ablation procedures. But I'm just hoping thing will get better rather than worse. I'm starting to feel this is going to be a long term process for me rather than a one and done ablation. I'm hoping the amiodarone will help with the tachycardia. Those episodes were scary.

    Any suggestions on how to approach my employer about my health issue, I've been missing alot of days and I'm getting the feeling I could get fired because of this.

  • Spencer
    Spencer, September 16,  2019  9:37pm EST
    IMG_0578.jpeg (1).

    Sorry... AFib doesn't let go till the fat lady sings, and she has laryngitis.  AFib is around for life.  We can beat it back into submission, but it is always with us.  I was floored when I was first diagnosed.  After that, I listened for each heartbeat , hoping it was in a rhythm.    Ami is pretty good and will help keep the tachy away.  You may want to search this website as myself, and many others had problems with the drug (yeah for side effects).  Others had no issues.  Each of us is different - in drugs and in AFib.

    Health and the employer.  That one is tough.  You have two choices, tell or not tell.  I'd council tell if you have a good relationship with the company and you can trust them.  They would help you out when you are sick and support you.  If this not the case, then don't tell.  The employer will not want to engage you directly as they can't ask about your health unless it is integral to your job.   You are in a tight spot with the job.  How much are you missing?  I would hope this ablation takes and you get back to work.  Tell us more about the work situation.

    This will get better.  It doesn't fell like, but it will.  It was just under two years ago that I started my journey in AFib, and I never thought that I would get better.  It took a while, but eventually, I had enough surgeries, shockings, drugs, and hospital stays to beat my AFib back into submission.

    Hope this helps.  I'm here all week, don't forget to tip your waiter.

    Spencer

    In the Sunlight

  • manijoao
    manijoao, September 16,  2019  10:18pm EST

    Thanks for the reassurance, it means alot to me and my anxiety. As for work I'll just keep it to myself for now unless I start having episodes there. Thank hevens it hasn't happened at work yet.

  • depotdoug
    depotdoug, September 17,  2019  4:14am EST

    Well manijoa, some of us have Tachycardia before AFIB some of us have Tachycardia after AFIB. My case I got it over with B-4 AFIB. Like Sudden Cardiac Arrest 12 days in CICU the 5 days rehab. AFIB was a side effect ~  2 years later. I didn’t even know what that four letter word was before I felt bad bad bad. Unfortunately I was involved in a Kairos inside Christian Prision Ministry back in April 2013 where we( me plus 40 other men) spent 3.5 days inside a medium maximum security Prison. We did get to leave the prison in the evenings but tge pressure on my heart got to me and AFIB was created. I had no clue what my heart was doing going crazy. You know what the symptoms are. So after Dx my EP #1 who ordered amiodarone as first line of AFIB defense day don’t really tell me the side effects were breath taking. Literally AMI meds’ at a high dose causes shortness of breath. Go figure. Which is worse SOB or AFIB ?? Both in my case. Cryo ablation # 1 was semi successful fixing 60% of my AFIB issues. Then 3 Cardioversions. I wanted rapid results and I wanted it now! 

    Oh did I tell you I’m going back into prison the end of October for Kairos’s is 24. I’m gonna keep this 3.5 days inside MCF AFIB Free. That’s the plan as they say in the military. Keep us updated....

    depotdoug

  • ichinyere
    ichinyere, September 18,  2019  8:41pm EST

    Good evening Manijoao, Spencer, and DepotDoug (hi again),

     

         My name is Ike Chinyere, MD-PhD candidate at the University of Arizona. I am participating in an entrepreneurship program that is having us perform interviews. My team and I are interested in bringing new therapies for Atrial Fibrillation to market and would like to get your opinions (as customers/end-users of such therapies) on the value of our new projects.

     

         The three proposals are 1) wearable sensors, 2) surgical biomaterial therapy, 3) improved RF ablation. Here is the explanation for each: 

     

    1) Wearable Sensors - If the patient could wear a device that continuously monitors the heart rate it could alert the patients and or clinical care team if the patient pops out of sinus rhythm and into atrial fibrillation, which could result in a more prompt change or intervention for medications involved in rythm control, which could result in less time spent in atrial fibrillation and less clot formation

     

    2) Surgical Biomaterial Therapy -  surgically/robotic/catheter-implanted biomaterials (either electrically conductive to restore function or electrically inert to impede arrhythmia propagation) or cardiac tissue grafts to restore healthy myocardium instead of pro-arrhythmic myocardium

     

    3) Improved Rardiofrequency Ablation - comparable ablation techniques that are currently used with an improved success rate

     

     

    Do any/all of them sound interesting to you? Do any of them sound like bad ideas or something you would not want to use?

     

    Thank you in advance 

     

    Ike

  • Spencer
    Spencer, September 18,  2019  10:15pm EST

    Doc, well soon to be doc, anything that gets me to NSR faster has my vote.  I think overall #1 would give the most benefit.  If I can show my doc when and for how long I have been in AFib, and will help them to diagnosis and gauge the seriousness of my arrhythmia.  About six days after my second ablation, I was given a 24-day Zio-Patch to wear because I showed AFib when I left the surgical table and generally over the next four days of hospitalization.  It showed how bad the AFib was and the doc scheduled my third ablation the day after the Zio-Patch was read.  If I as a patient could see when I went into AFib that would help me to narrow down triggers, and also tell me to slow down and rest more once in AFib.   The clotting angle on number one is also of importance.  This is something that is of great concern to those that are new to AFib.  The arrhythmia is concerning to them, but I often see that a stroke is much more concerning.  

    If you want, we can set up a phone call if you need more information.  Happy to help.

    Doug - what's going on?  Haven't heard from you in a while.  My heart has been good of late - NSR but with chest pain a couple of times each day.  The insurance company doesn't care to pay for a CT, so I am still jousting on that windmill.  The other doc says that I am still crazy and what to electrocute my white butt sometime soon (electro-convulsive therapy).  I think he is just upset because the insurance company takes so long to pay.  I wonder if the machine has settings like medium-rare and well.  I know for my cardioversions the doc only knew one setting - extra well.

    Spencer

    In the Sunlight

  • depotdoug
    depotdoug, September 18,  2019  10:41pm EST

    Spencer,   Here is my AFIB/Prostate Cancer awareness update from a bit earlier in this Post Topic.  But 1st just for you Spencer, I've got through my 1st week of LUPRON Depot hormone injection i had last week dow in Indy @ The IU Simon Cancer Center. What an amazing place, the IU Simon Cancer Center I mean, people, people everywhere some using Walkers, some in WheelChairs, some with Canes, and I'm trying to speed along the hallways and stairways at record pace. No honestly I am doing fine One(1) week post hormone injection shot in the butt. But doing well E.E.C. twice daily and no side effects like tired or 'hot flashes' or low energy. Oh and yes NO AFIB arhytmia symptoms to date. Lets keep it that way. Yes I'm taking  my own EKG reads daily, either with my ALIVECOR now KARDIA plate and my marvelous APPLE S4 super watch. I even did a 18 min jog/run this morning on Planet Fitness treadmill.  At home I've been reverse landscaping a project out back. Digging up old embedded Landscape Timbers from the ground, lifting them and moving them with encased encrusted mud and bugs, to a cart and sawing them in pieces. It's kind of like lumberjaYes, cks working with dead trees. Exercising with Landscape Timbers 101. 

    I do repeat PSA and Testosterone blood labs in 5 weeks to see where my Prostate Cancer levels have maybe reduced in both labs. Goal is for PSA to go down, down, down and Testosterone to definitely go to zero. Prostate Cancer cells feed on Testosterone therefore take its food source away. MY last PSA labs were 14.394ng/mL (08/20) and  8.566ng/mL (9/10).   One more thing from depotdoug, Yes, I've enlisted my EP and Cardiologist on my Medical Oncologist notification treatment team progress summaries. Plan on staying AFIB Free for the rest of 2019.  Doug

    (my previous post is below)

    "Well manijoa, some of us have Tachycardia before AFIB some of us have Tachycardia after AFIB. My case I got it over with B-4 AFIB. Like Sudden Cardiac Arrest 12 days in CICU the 5 days rehab. AFIB was a side effect ~  2 years later. I didn’t even know what that four letter word was before I felt bad bad bad. Unfortunately I was involved in a Kairos inside Christian Prision Ministry back in April 2013 where we( me plus 40 other men) spent 3.5 days inside a medium maximum security Prison. We did get to leave the prison in the evenings but tge pressure on my heart got to me and AFIB was created. I had no clue what my heart was doing going crazy. You know what the symptoms are. So after Dx my EP #1 who ordered amiodarone as first line of AFIB defense day don’t really tell me the side effects were breath taking. Literally AMI meds’ at a high dose causes shortness of breath. Go figure. Which is worse SOB or AFIB ?? Both in my case. Cryo ablation # 1 was semi successful fixing 60% of my AFIB issues. Then 3 Cardioversions. I wanted rapid results and I wanted it now! Oh did I tell you I’m going back into prison the end of October for Kairos’s is 24. I’m gonna keep this 3.5 days inside MCF AFIB Free. That’s the plan as they say in the military.

    depotdoug

  • ichinyere
    ichinyere, September 19,  2019  3:22pm EST

    @Spencer,

     

    Thank you very much for your feedback and willingness to help. I would greatly appreciate the opportunity to pick your brain a little bit more

     

    While phone call is easier, email is best because I don't have to write anything else down! I hope that is ok for you

     

    Please email me at ichinyere@email.arizona.edu

     

    Thank you

     

    Ike

  • Spencer
    Spencer, September 19,  2019  3:29pm EST

    Got you doc.  Sent you an email.

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