BeverlyRae
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BeverlyRae, October 10,  2019  9:59pm EST

Now what?

Hi Everyone:  I really appreciate hearing others' stories - it helps to know that we are not alone in this. I am a 61 year-old female diagnosed with lone AFib about 10 years ago. I had a partial ablation (transient phrenic nerve issue) in 2013, a PM several months affter that, and subsequent ablations in 2016 and May 2019.  Each procedure helped for awhile, and I had no AFib for several months after the third ablation.  However, I'm starting to again experience AFib, as well as atrial flutter, which had not previously been diagnosed until my last ablation. I return to NSR without cardioversion. I am still taking Diltiazem and Eliquis. Fortunately, my symptoms are not debilitating, but tiring and emotionally upsetting. I plan to see my EP again soon, but would be happy to get ideas and suggestions about the kinds of questions I might look into.  

8 Replies
  • MellanieSAF
    MellanieSAF, October 11,  2019  6:36pm EST

    Beverly,

    I'm sorry that you are having challenges. Have you had a sleep study? Sleep apnea is a common reason that afib returns.

    Mellanie

  • BeverlyRae
    BeverlyRae, October 11,  2019  8:53pm EST

    Mellanie,

    No, but I will request one - and I appreciate the suggestion.

    Beverly

  • BeverlyRae
    BeverlyRae, October 11,  2019  9:06pm EST

    My EP's office suggested doubling up on diltiazem, after which I converted to NSR while sleeping. Issues  started again when I resumed my daily routine.  Walking helps temporarily restore NSR as well. I'm trying to get an appointment with the EP and was able to schedule for next week with my cardiologist.

  • Edhammer
    Edhammer, October 12,  2019  6:34am EST

    Beverly,

    diagnosed 10/17 with afib, drugs didn’t do the job. Had an ablation 5/18. It was successful up until last week. I’ve developed a weird kidney disease. It’s treatable with high doses of prednisone. There’s a link between prednisone and afib. Afib kicked in. First, episode lasted 22 hrs, in ICU until it got back in rhythm. Same thing again this past week. Only in ICU for a day. Rhythm kicked back in. Hospitalist added Cartia to my cocktail as well as getting back on Eliquis.

    doing a bit of timing of the taking of the various drugs hoping that will help me stay in rhythm and not goof up my blood pressure too much. Seeing my EP at his next available appointment.

    i haven’t found as good a forum as this one for weird kidney diseases.

    my story for now.

    Good Luck on this journey

     

  • BeverlyRae
    BeverlyRae, October 17,  2019  11:44am EST

    I was able to see my EP earlier this week, and it turns out that I am now experiencing non-stop atrial flutter - but fortunately no atrial fibrillation.  It goes at different rates, so apparently what I had thought was NSR was instead slower heart rate, but still atrial flutter.  They were able to assess this by doing close review of my pacemaker readings.  After considering the options, including returning to Sotolol or increased diltiazem dosage, I am scheduled for a "re-do" ablation (#4!) on Monday for what is most likely atypical left atrial flutter. I am somewhat nervous, but cautiously optimistic.

  • MellanieSAF
    MellanieSAF, October 18,  2019  12:04pm EST

    BeverlyRae,

    You might see if they can get you scheduled for a home sleep study ASAP and start treating sleep apnea if you have it. That will lessen the risk of going back into an arrhythmia after this next ablation.

    Mellanie

  • BeverlyRae
    BeverlyRae, October 18,  2019  3:39pm EST

    Mellanie,

    Thank you!  I just called my primary care provider's office to request it.  😊

    Beverly

  • BeverlyRae
    BeverlyRae, October 23,  2019  7:59pm EST

    Ablation on Monday (#4) went very smoothly, and I am happily back in NSR and hoping this holds.  I am also waiting on sleep apnea referral, per Mellanie's great suggestion - my PCP agreed that that would be good to do.

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