Thumper2
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Thumper2, May 5,  2018  8:31am EST

Intermittent use of CPAP

Does anyone have an opinion/experience on this?  In July, I will be going to Scotland, etc., for about two weeks.  I use my CPAP on a regular basis.  However, I'd rather not take it with me for this period of time, just because I don't want to haul it around and have to keep finding places to set it up and plug it in every night, as we sight-see.  I know I can get an adapter plug for the higher voltage, so that is not a problem.  Are there any reasons that not using my CPAP, just for this period of time, would be a bad thing? I'm never in sinus rhythm anyway, and have a pacemaker that keeps my ventricals beating regularly.

Thumper2 (Judy)

  • MellanieSAF
    MellanieSAF, May 5,  2018  9:32am EST

    Judy,

    I personally have been reluctant to travel without a way of managing my sleep apnea because I don't want my afib to come back. But, with you being in afib all the time, that would not be the case for you.

    What about your oxygen saturation? How low does it drop when you sleep or nap without your CPAP? That would be a concern to me. 

    Because I travel internationally so much, and because you can't use a CPAP on long international flights without carrying a huge battery with you, I had my dentist fit me with an oral device (Thorton Adjustable Positioner, which is FDA-approved for sleep apnea) specifically to allow me to sleep on long international flights and to avoid lugging my CPAP on international trips. It was not cheap - about $1,000 - but was worth it for my health and to avoid afib.

    There may be other less expensive options, but I would not rely on one of those "boil-and-bite" mouthguards for snoring as I don't think they are sufficient for sleep apnea. You might check with your dentist about options.

    Mellanie

  • Wiggles
    Wiggles, May 5,  2018  9:59am EST

    Well once again, had to go through about 6 different screens and log in twice in order to reply but here I am finally.  

    I have gone on numerous international trips (including Scotland/Ireland) since I began using  CPAP.  A few years ago I bought a travel machine (after taking my big one the first time in it's separate bag) that fits in either my carry on or sometimes I put it in my checked bag.  I found I had enough to carry without carrying the CPAP bag (and it's heavy) although there never was a problem with it being an "extra" bag with the TSA.  I don't really sleep on long flights so that's not an issue for me.  I always take an extension cord and of course the plug adapters.  Foreign hotels are not flush with outlets and sometimes I've had to string cords clear across the room!  I now have a handly device that has slots for two charger cords and three plug ins that attaches to my extension cord if the outlet is not close enough to the bed.  Sometimes I've gone several days without using my CPAP but I've been reluctant to go a couple weeks.

  • Thumper2
    Thumper2, May 7,  2018  8:35am EST

    Mellanie, thank you very much for your response to "Intermittent Use of CPAP."  I don't think I ever had an oxygen saturation problem while in the hospital, but it's been months since I've been in a hospital.  I never measure it at home.  I will talk to my dentist.

    All the best,

    Thumper2 (Judy)

  • Rbrandt
    Rbrandt, May 7,  2018  10:07pm EST

    Hi Judy,  I dont have any overseas experience but I take mine with me every place I go (even had it brought to me in the hosptial last stay) and we’re tentatively planning on a European river cruise next year and I will take mine with me. So far its been to Florida 4 times even Disney World. I have a little portable cpap “table” that slides in between the mattress and box springs. When its broke down it fits in a box about 10”x4”x3” so it doesn’t take up much space when packed and I just throw in a couple extension cords to run my cpap and charge our phones. I just know I feel better when I use mine and I just am not going to risk it.  Hope you have fun in Scotland.  

    May we all have NSR 

    Roy   

    (MyAfibExperience Community Leader) 

     

     

  • Elise
    Elise, May 8,  2018  3:27am EST

    My CPAP has been all over the world with me. I feel rotten if I don't use it, and there's no point in travel if you're too miserable to enjoy it. I used a small travel machine for many years but I now take my ResMed Airsense 10 wherever I go.

    Mellanie, batteries have improved a great deal in the last 20 years. My current battery is  a Medistrom Pilot 24. It's about 5" x 8" x 1/2" and weighs about 3 pounds. I used it last week on a flight to England. 

    I stick my whole rig in my single carry on and I'm good to go.

  • AHAASAKatie
    AHAASAKatie, May 8,  2018  9:30am EST

    Good morning Wiggles, I put a note on your profile page as well. I want to troubleshoot your log in issues if all possible. Please email me at SupportNetwork@heart.org if you would like to pursue fixing this. Best Katie

  • DkinAA
    DkinAA, May 9,  2018  9:16am EST

    My ResMed Airsense 10 came with a travel case that makes it easy to be sure you packed everything and  is amazingly light and compact. I keep a medical equipment letter in the case, but have never had to show it - I think it is routine these days.

    That said, first time I traveled with it to a conference, I left out a piece (the hose elbow) and so didn’t use it for three nights, taking care on my sleeping posture, and didn’t have an afib episode. 

  • Thumper2
    Thumper2, May 10,  2018  3:15pm EST

    Has anyone here used the Provent Sleep Apnea Therapy?  It uses two little taped-on things, one on each nostril, to breathe through, instead of using a CPAP.   I thought I might use it for the two weeks I will be abroad this summer, rather than taking my CPAP with me.  It requires a prescription to get it, but the cost for a 30-day supply is quite reasonable.  The cost of everything else (like things inserted into the mouth, or molded to the mouth, etc.) seems enormous.

    Thumper2 (Judy)

  • Heartfe6878
    Heartfe6878, May 10,  2018  6:57pm EST

    I have seen your posts and am concerned. I was under the impression that the heart resets itself and rhythm is also regulated in sleep. This is one of the reasons that the CPAP or Bipap are so important to be used if you have Sleep Apnea....I can tell you the differnece that the Bipap made for me...I can  not go without useing it for more than 2 days and my "old firend"  Atrial Fib  sticks its ugly head up into my life again...On a 2 week vacation. It seems the word that is important is vacation....and not dealing with Sleep Apnea...So I personally would not want to mess with doing anything different than I was used to before my vacation. I have a personal friend who tried this and ended up spending part of the vacation in Potugal  in the hospital instead of enjoying the lovely vacation she dreamed of.... Just a different view for your to consider.

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