Rensalier
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Rensalier, December 1,  2020  4:07pm EST

Afib, cardiomyopathy and coffee

Relatively new to the forum but I've learned a lot since being here thanks to all of you. I have had surgery for hypertrophic cardiomyopathy - about 4 years ago - and about 90 days ago I had a cardiac ablation because I was having very short bouts of afib. Those bouts would last less than a minute but they were very disconcerting especially after the open heart surgery. 

Since the ablation I have continued to have the short bursts of afib (just had one while typing this) and I'm wondering if they'll go away after a while. I've been back to the Doc and he's seen them on the Latitude device that's implanted in me but he wants to continue to monitor me until January at which point we'll make a decision about what to do next. I suppose another ablation might be on the table.

One question I have is am I expecting too much too fast - in other words I'm not giving myself a chance to heal and I need to be more patient? The other question that I have is I allow myself one 16oz cup of coffee in the morning which is a lot less than I used to drink. That said, could that coffee be contributing to the ongoing afib twinges that I'm getting?

Any advice or thoughts would be appreciated. Thanks very much.

8 Replies
  • Heartfe6878
    Heartfe6878, December 1,  2020  4:59pm EST

    Certainly think that you have answered your question...Coffee is completely off the table for many many of us...I would say all. But there are the outliers that prove me wrong...Have you tried Hot water and Lemon ? Or Golden Hot milk  or anything without the caffeine? Sometimes we have to make hard choices to get the results we need. We all have something that gives us pleasure and makes us feel normal...But the new normal is wanting to get rid of the afib if we can and move on to better health and stroke prevention.

  • Rensalier
    Rensalier, December 1,  2020  5:17pm EST

    Heartfe6878 - I suspected as much and I agree with you regarding the coffee. Sometimes there are answers that we don't want to hear but those things that we have to face and change if we don't want conditions to remain the same. I appreciate the honest response. 

  • Larkspur
    Larkspur, December 2,  2020  1:28am EST

    And on the other hand, many of us are not affected by coffee at all. Perhaps you will need to experiment by cutting out coffee or reducing the amount that you drink but I think you'll hear that many of us with Afib do fine with a cup or two of coffee each day. As with so many things, it seems to be individual.

  • Bob1965M
    Bob1965M, December 2,  2020  12:47pm EST

    Hello... I'm New to this forum .. I've had A-Fib for about 10yrs and one of my triggers is Caffeine.  

  • Heartfe6878
    Heartfe6878, December 2,  2020  2:52pm EST

    As I said there are exceptions to everything...But you were trying  to solve a problem.... Caffeine is a troublesome issue. It excelerated the heart. I joke with my daughter. I would like a cup of warm coffee...She says to me...."Well, we can go to the emergency parking lot and see if you can get a cup there". It is not a wise choice for many many with afib...

  • Heartfe6878
    Heartfe6878, December 3,  2020  12:35pm EST

    Did you know that decaf has caffeine in it?

  • Rensalier
    Rensalier, December 3,  2020  1:17pm EST

    Heartfe6878 - You are absolutely correct. Did a bit of research and the USDA regs state that decaf has to be just 97% caffeine free. The problem with that guideline is that some coffee starts out with a lot more caffeine than others meaning that the end result - even though 97% of the caffeine has been removed - can be greater. There is no standard that states that decaf can contain only X milligrams of caffeine and in fact, according to the Mayo Clinic, the amount of caffeine in decaf coffee can range anywhere from 2 to 25 milligrams. That's a large variation that could impact a person significantly.

  • Heartfe6878
    Heartfe6878, December 3,  2020  2:44pm EST

    Caffeine can show up in other things like Chocolate etc. Something to be mindful about during the Holiday season...Energy drinks also have caffeine...Be sure to read labels about anything that can normally excelerate the  heart...With afib, it  makes is excellerate and I believe is something that I watch carefully.

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