fusspot1959
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fusspot1959, August 16,  2019  3:18am EST

14 years of Afib And no stamina

Officially diagnosed with Afib in 2005, but had it for several years before diagnosis.  All the symptoms could be explained away as side effects of medicines I was taking.  Until one morning when I tried to talk and no sound came out.  Went to ER and the cardiologist told me what was going on.  I was put on Coumadin, Rhythmol, and Toprol.  The Rhythmol was stopped after two years.  Was cardio converted a couple months after diagnosis.  But I’ve stayed in Afib status most of the time since.

Has anyone had issues with dwindling stamina?  That’s been happening to me lately.

update:  my pcm finally looked at my BP readings and made some adjustments to what i take [mainly drop cardura and norvasc]  now he wants me to see a pulmonologist.  we'll see how that goes.

3 Replies
  • Thumper2
    Thumper2, August 17,  2019  8:20am EST

    Fusspot1959, I can identify with the "dwindling stamina," having been in AFib (with very few symptoms) for about ten years.  In 2016, when I finally got to an electrophysiologist (rather than just a cardiologist), I discovered that my heart had been remodeling itself in negative ways, which led to the dwindling stamina (I had gotten so that I needed 3 naps a day and had little energy for anything else).  Then I began cardioversions and ablations, which I wish had happened ten years earlier.  They did not help, although I do recommend them!  I had a specialized procedure involving the His Bundle which turned things around for me.  But I urge you to go for ablations and then inquire about other options (Mini-Maze?) which members of this forum can describe.  All the best,

    Thumper2 (Judy)

  • ShellyH
    ShellyH, August 17,  2019  5:25pm EST

    Five months after a successful ablation, I suddenly went into atrial flutter.  I then had no stamina at all.  Playing tennis, if I ran at all, I would get light-headed.  Another ablation took care of that, and I have been in normal rhythm for 20 months.  Have you seen an electophysiologist? considered an ablation?

  • MellanieSAF
    MellanieSAF, September 21,  2019  9:58am EST

    fusspot1959,

    Staying in afib makes it more difficult to get out of afib eventually - as Judy said, staying in afib results in remodeling of the heart, which is not a good thing. As you stay in afib, the heart undergoes both structural and electrical remodeling. 

    Research has shown that about 85% of cardioversion failures are due to untreated sleep apnea. Have you been tested for sleep apnea?

    If you have sleep apnea and are being treated for it, it is possible that you might be able to have a successful cardioversion or a successful ablation (catheter ablation by an electrophysiologist or surgical ablation, such as a mini maze, by a cardiac surgeon). But, the first step is to get diagnosed and treated for the sleep apnea.

    An electrophysiologist can order a sleep study for you (a home sleep study might be an option).

    Mellanie 

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