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Essexchap72, February 6,  2020  8:34am EST

New to all this

Hi everyone, I'm new to this forum and wanted to say how glad I am I stumbled across it as there's a lot of info and support in here. :)

I've recently (past 12 months on and off) been having bouts of ectopics, sometimes lasting a few mins, sometimes up to 12 hours or so. 

I've been to A & E a couple of times and gone through the usual tests as detailed many times in this forum and they have yet to record anything on the ECG as by the time I'm seen they have stopped. 

I wanted to know if anyone here has been diagnosed as theirs being caused by a gastronomic condition like a hiatus hernia? I suspect mine is, although never been investigated for a hiatus hernia. I do have a lot of the symptoms of that though, with reflux and food sometimes coming back up etc. 

Also, I seem to have this strange thing happening with my heart rate in that it drops really low after a short burst when I move in bed, or sit up from laying down, or stand up, or a lot of the time it seems simply from just breathing. It's always much worse when I'm upright and eases off nearly completely when I'm laying down. It's all very odd! I just get the feeling my vegus nerve is being activated and is then doing its thing and slowing my heart rate when really I dont need it to. Sometimes it slows to a pause, although I dont feel dizzy etc like I know some people can. 

Anyone else have anything like this? 

I have my first appt with a cardiologist on 12th, so hoping to get some answers and want to push for more tests, like an angiogram to make double sure there's nothing wrong with my heart structurally and the arteries etc surrounding it. 

3 Replies
  • Thumper2
    Thumper2, February 7,  2020  9:07am EST

    Essexchap72,  glad you're here and that you are seeing a cardiologist.  Is he/she an EP (electrophysiologist)?  They specialize in atrial fibrillation and other electrical problems of the heart.    Please let us know how things are working out for you.  All the best,

    Thumper2 (Judy)

  • Jrincleve
    Jrincleve, February 7,  2020  9:40am EST

    They are not cheap but I have an Apple watch that can take your EKG.  You can then export that to a PDF file and print and take along to the doctors appointment so they are not guessing and can see exactly what is happening.

    Good luck!

  • AlyAHA
    AlyAHA, February 7,  2020  11:22am EST

    Welcome! I’m so glad you’ve found our community and that you’ve reached out. I am a Community Leader on the Support Network and am excited to have you as part of our community :)

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