LauraD
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LauraD, March 30,  2021  4:30pm EST

Has anybody had repeated A Fib attacks ?

Hello, I was was diagnosed A Fib about 2 years ago now after I thought I was having a heart 

attack in the middle of the night.I had just lost 35lbs and was feeling great to!

I Was admitted to ICU for 3 days.It was  the worst pain I have ever felt.I felt like my heart was litteraly going to break out of my body, jumping so hard.

I didnt  have another attack for about 6 months, so bad put in ICU again, and then 5 months later again. I do not take the meds daily because they make me feel so bad and dizzy.

When I have attacks I do the "Pill n Pocket" Method and it will usually put me back in normal sinus within 5-24 hours. I take flecainide for pill n pocket.

I just wanted to know, have any of you experienced having more A-Fib attacks since you have been taking A-Fib meds? Especially Flecainide?

And if any of you continued to have A Fib attacks more frequently going forward, even several days in a row? 

Has any of you had any success naturally helping to stop A Fib attacks.

They hurt so bad and I have had one everday for the last week for some reason, I cant keep doing that.

Thank you for your help:)

 

7 Replies
  • AHAModerator
    AHAModerator, March 30,  2021  5:23pm EST

    Hello there, 

    Thank you for sharing your story with the MyAFibExperience community. I am sorry to hear you have been having repeated AFib attacks. I hope you start to feel better soon but hang in there. As you wait for others to respond and share their experiences here are some AFib and AFib Treatment and Prevention resources with you to help you learn more. 

    Please keep us updated on how you're doing! 

    Best wishes, 

    AHA Moderator 

  • jameskelly
    jameskelly, March 30,  2021  5:40pm EST

    Laura

    I suggest you see an EP and discuss having an Ablation. I never heard of pain associated with Afib. I am on Sotalol and if seems work for me. You really should see your Cardolgist asap. Keep us informed.

     

    JJK

  • nileprincess
    nileprincess, March 30,  2021  7:52pm EST

    After 3 years, I  had a second A-fib attack on Feb. 7 of this year.  I underwent a cardioversion and my cardiologist suggested I try taking flecainide twice daily.  Since I have been taking the flexainide, I have had NO symptoms of A-fib. I do get lightheaded after taking flecainide and when I asked my doctor about that, he said I could cut it down to 1/2 pill  twice daily, but he could not guarantee that I would not have another a-fib attack.  I decided to stay on the flecainide because I do not want to have continued A-fib attacks.  I have learned to live with the light headedness. For me, it is a safer alternative.  Hope this is helpful.  

  • bfboca
    bfboca, March 31,  2021  4:21am EST

    LauraD.  Re: flecainide.  I extremely doubt flecainide is the problem as it is the number one script prescribed to Afib patients that are taking AAR's to prevent Afib events.  As your Afib events are causing you such pain and have become more frequent, I would strongly suggest you google as much as you can on Afib ablations and at the same time make an appointment with an EP.  Bob

  • dsavoie1953
    dsavoie1953, March 31,  2021  9:14am EST

    Here are the risk IF you do not get an RF Ablation soon:

    1- Dilated ( enlarged) left chambers and aorta in the heart 

    2- Mitral value regurgitation (leaking) of one of the other 3 heart valves

    3- If you have HBP pressure well that will trigger AFIB and insomnia 

    After 2x years your heart is approx. 2x NSR. Do not wait until persistent AFIB. Trust me I waited 6 months too long! 
     

    What is your cardiologist telling you? The plumber. Now you need a electrician. Electrophsiologist ASAP!

    Recommendation get you a baseline test done ASAP no matter what a good Cardiologist can and will order. 

    1- Stress ECHO or Nonstress ECHO and CT Scan (Heart) 

    2- Blood work 

    3- Nuclear ECHO for blockage depending on 1 and 2 

    4- Get a sleep study done - you may have sleep apnea. In my opinion over time triggers AFIB 

    4- Life style changes - no process goods, no salt and definite no sugar in drinks or food 

    5- Walk in moderation with AFIB after in NSR excerise 

    If your in AFIB be prepared to do the Nuclear ECHO 

    1- Make sure your Cardiologist and EP work as a Team. 
    2- Get a highly successful EP that has done at least 5,000 ablations

    Dennis 

  • Larkspur
    Larkspur, March 31,  2021  12:13pm EST

    Hi Laura,

    I also had pain when I got uncontrolled Afib occurrences with really high BP and HR. As soon as these numbers came down with medication, the pain would subside. But, every time you get Afib, your body responds by making it more likely that you will get more episodes. Without treatment, Afib is progressive. As they say, Afib begets Afib. When you take Flecainide as a pill in a pocket you are taking a very high dose--many times higher than you would take with daily dosing. I do take a modest daily dose of Flecainide and have not had an episode for several years. The side-effects are much less with smaller doses. But, being evaluated by an excellent EP for an ablation is another very good choice. The operative word here is "excellent"--an EP who has successfully done done hundreds or thousands of ablations. Many travel to get an ablation from such an EP as there are a very limited number with that level of experience.Members here would be able to give the names of these super experienced EPs in your part of the country.

    And yes, I did try to control Afib naturally but was not successful and was so thankful when I found an excellent EP.

  • dsavoie1953
    dsavoie1953, March 31,  2021  1:48pm EST

    Very valid points - good information! Larkspur 

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