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Breakthrough Afib on dofetilide/Tikosyn
Good morning all! Hope those of you who want to be vaxxed have been. I'm thrilled at being five weeks past Dose 2.
Very specific quuestion: Has anyone who has experienced longterm good results on dofetilide/tikosyn had "breakthrough" Afib, that then resolved? I know that for some people this class did not work at all.
But my narrow question is did anyone have a breakthrough, then continue to have overall success going forward?
Tihis terrifically useful (for me) drug got me through 14 months of the pandemic with just a couple of very very brief episodes. NOW, as we re-emerge (and there is a flurry of activity in my life -- one on one and done safely, but lots of social interaction with vaccinated family and friends) I am feeling a different kind of stress that I think put me into Afib for 24 hours.
It just let up a few minutes ago.
My track record with this abomination of Afib points to stress as the main trigger, and I'd welcome anyone else's experience:
On it, it works, then a breakthrough episode, then it works again for a lengthy time?? Thank you! I do not like to think it is losing its effectiveness.
Patio7, May 2, 2021 3:42pm EST
I have had good success with Tikosyn. However a few hours after my second Pfiser vaccine shot I went into afib. It lasted a very long five days. Just as my electro cardioversion was being scheduled I converted on my own. Hooray! That was early March, two months ago, and I have had no issues since. My EP and I believe Tikosyn is still a very successful option for me.BTW I have both afib and aflutter. 🤞 good luck.
Thumper2, May 4, 2021 8:45am EST
My husband is on Tikosyn and has been for some years -- he has what's called "managed Afib." Neither of us had any AFib issues from getting our Pfizer vaccinations.
Elise, May 5, 2021 8:37am EST
I started Tikosyn in December 2017. I was in NSR with no breakthrough AFib for 14 months. I began having tachycardia and AFib in late February 2019 and was in and out of AFib for 2 months. I started taking metoprolol and gradually increased my dose to 25mg twice a day. I had cardioversions scheduled twice but spontaneously converted the morning of both times. In late April 2019 I had a cardiac PET scan. During the scan my heart rate was in the 150s and I was in full blown AFib. An hour later I again spontaneously converted to NSR and I've been in NSR ever since -- two full years now. I was able to decrease my metoprolol to 12.5mg daily.
So yes, I had complete success with Tikosyn for a year, failure for two months, and complete success again for two years. Fingers crossed that Tikosyn and a small dose of metoprolol keep me in NSR henceforth.
I've had both my Pfizer shots with no AFib and no perceptible reaction.
grandscheme, May 11, 2021 9:23pm EST
Thank you so much for the replies, and apologies for being tardy in replying to you.
I had no worries about vaccine causing a breakthrough; I'm just happy to hear that some people had a rough patch for whatever reason and got back on track. Great news.