AHAASAKatie
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AHAASAKatie, May 15,  2018  9:29am EST

Announcing the American Stroke Month Sweepstakes Week One Winners!

Congratulations to our first pair of winning Support Network members Spencer and jstarkw123. Please email us at SupportNetwork@heart.org to claim your prizes- a 1-year membership to Thrive Market and a $100 gift card. 

Remember, we have three more weeks to go. Rules are simple! Post two or more times in one week and you will be entered into a randomized drawing for the 1-year membership and grocery gift card. 

Not sure how to start a conversation on the site? I am sharing a few of thoughts/feelings I have dealt with post DVT event. 

1. As a survivor, I find it hard to take all of my medications when I am supposed to. I do not like being tied to a "pill." I am curious how other people manage these feelings? 

2. There are days the isolation of recovery from the back and DVT surgery left me feeling very alone. Do you ever feel that way and if so, what do you do about it? 

3. I get tired of feeling like my illnesses define me, can you relate? 

If these resonate with you, please feel free to use them or create your own. Regardless, please post, share and comment about your experiences regarding survivorship, caregiver, rehab, and recovery. We are one community designed to support and care for each other. More information about the American Stroke Association Thrive Market Sweepstakes can be found here. 

Best

Katie Bahn
Community Manager

3 Replies
  • MellanieSAF
    MellanieSAF, May 15,  2018  9:41am EST

    Katie,

    I put taking my meds on autopilot so that I don't have any emotional energy involved in that activity. I use the Medisafe app, which reminds when it is time to take the meds so it just becomes one more to-do list item for me when the "alarm" goes off. (The first time we heard the default alarm, a shaking pill bottle, it sounded like we had a rattlesnake in the office, so I changed that immediately.) I have no emotional energy invested whatsoever in taking my meds. It's pretty much on autopilot.  

    The younger you are, the harder it is to adjust to a new normal of having a condition and what that means to your lifestyle. Give it time. It will eventually become the norm, and thus less bothersome. 

    Mellanie

  • patrickg
    patrickg, May 15,  2018  9:54am EST

    Hi Katie,

    I enter my meds on the “Reminders” app on my iPhone and get alerts on both my phone and Apple Watch. After I take the meds, I enter a note on the calendar app so I know I’ve taken the med which gives me a record going forward.

    They say memory is the second thing to go, so I need all the help I can get! 8-)

    Patrick

  • Spencer
    Spencer, May 15,  2018  7:48pm EST

    Katie - Thanks and I am honored.  I just started a new thread that was tough for me to write about AFib and how it has affected me.  I hope that many use the Emotional Well Being forum of this website.  I can not still understand how profounding this AFib has affected my life.  Many on this board have helped me, and I hope that I can in some small way help someone else.

    Spencer

    Waiting for my Sunrise.

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