TwoWheels
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TwoWheels, March 27,  2021  6:34am EST

Afib is back

Please see intro page for history and stats.
 

Well, after being switched from the meds that didn't work ..well worked but rendered me useless except for sitting...to Dilltiazem, which was a great feeling...1 a day plus thinners, I was a happy guy.

Back on the bike peddling merrily along...nothing stressful, 10k a day plus my reduced to 4km dog hikes sort of thing. no diet changes or stressy incidents, happy happy happy.

Then...same scenario...go to bed atm10:00... Wake up at 11:00...frikin afib has returned 🤬

I've been keeping a log....I have a cuff at home and wear my Apple watch always. 2 weeks of bliss and no idea what restarted it. My numbers have been decent for a 66 year old..in my GP's opinion....130's/70's/ low 70's... steady. 
I am on  "the list" to see a cardiologist for further imaging and testing, but until then...what? Suck it up?  Change meds again to....??? Metoprolol worked, but dropped my BP into the 114-119 range, which made any movement a breathless chore. 

Suggestions? Experiences?

Dave

 

6 Replies
  • Thumper2
    Thumper2, March 27,  2021  8:32am EST

    Dave, get on "the list" to see an electrophysiologist (EP) -- this is a cardiologist who specializes in treating Afib.  Meds will work for a time, for many of us, but IMHO, look to ablation(s) by an EP who has done hundreds of them successfully.  Also, do you know if you have sleep apnea?  If so, treating it should make any ablations more likely to succeed.  Based on my experience with AFib, do not just try to "live with" AFib -- over time, your heart may be quietly deteriorating.  Glad to hear you're on a blood thinner.   For more information, go to     StopAfib.org         and let us know how things are going!

    Thumper2 (Judy)

  • AHAModerator
    AHAModerator, March 27,  2021  11:40am EST

    Hi Dave,

    Thank you for keeping the community updated on how you are feeling. I am sorry to hear that your AFib has returned. It must feel very frustrating. As mentioned we would recommend reaching out to your cardiac care team to discuss options for treating your AFib symptoms. Here is a resource I can share on treatment options for AFib.

    Please keep us updated on how you are feeling!

    Best wishes,

    AHA Moderator

  • TwoWheels
    TwoWheels, March 27,  2021  2:34pm EST

    Thanks so much,  I reached out to my cardiologist the day it first happened, and I am "in the que" for treatment. Meanwhile the meds are still working, and I'm wracking my brain as to what the trigger was. I'm thinking maybe food-based somehow. Garlic? Pasta? Diet Pepsi? One of so many spices that we put in our food...my wife is an Epicure consultant, so ya, lots of yummy spices lol. For the most part we follow a DASH diet and are "flexitarians" , so who knows. I managed to do my normal briisk hike with the dogs, and felt great during and after... albeit a little tired from the lack of sleep *see afib episode last night* so it's just a waiting game until my cardio appointment. I updated them via email. 

    Stay tuned.

    Dave

     

  • DkinAA
    DkinAA, March 28,  2021  8:49am EST

    Dave, from other posters here, and my own experiences (I've been keeping a log), it seems like there are some very common triggers, like dehydration (without or without salty food), stressful events, too much alcohol or caffeine,  vagus nerve events like eating or drinking something really cold. Some episodes start in the middle of the night when HR is very low, maybe because the heart rhythm system is more susceptible to the random electrical noise in the atrium. 

    But I'm convinced that some of my episodes are essentially random -- so I can go nuts trying to figure out what started each and every one. And maybe many episodes quit for a random reason also, though many of us have noticed some things that help - for me it was a brisk walk.

    In short, I think you can reduce the frequency of episodes by being vigilant about your own triggers, but don't be surprised if some number of them come out of the blue. (My opinion - IANAD - I am not a doctor). 

    if you are on only a thinner and diltiazem, it is my understanding that the diltiazem (which I've always been on) is rate control for helping the HR down when afib is happening -- it doesn't do much to prevent an episode. I've been on the usual next step up, an anti-arrhythmic drug, which helps prevent the fibrillation from starting in the first place.  It works pretty well for me, but not perfectly. Then an ablation procedure can remove the source of the bogus electrical signals in the atrium that cause the problem in the first place. Getting with an EP is a good way to make the best progress on figuring out what works for you. 
     

    Let us know how it goes!

     

  • Somde
    Somde, March 28,  2021  2:51pm EST

    Try ablation. It works in most cases

    .

  • MarthaE
    MarthaE, March 29,  2021  4:53pm EST

    I've been dealing with a fib and flutter for ten years.  I've been on the two meds you mentioned, had four cardio versions, two ablations, and just today saw my cardiologist with symptoms.   I go into the hospital April 20 to start on tikosyn.  It seems like it never goes away, very frustrating.   I hope your new med works for you.  

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