58brendaB
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58brendaB, August 2,  2019  9:14pm EST

AFIB AFTER

Hi I am new here and I just want to introduce myself.
--- Not really sure where I am supposed to post ---

 

A little background , I am 61 now ( 2019 )
I have had AF since 2014 
Once a yr prior I went to the ER with what they said was tachycardia. They sent me home saying I was under stress - I had had a loss in the family.

Two yrs later in 2014 I was sitting at the table and my heart was racing.

Decided to go to the hospital because I was attempting to take my BP with a home cuff and it would not register.

My heart rate at the hospital was over 220
I converted approx 7 hours later with medication. I was admitted and spent 3 days.Hospital Dr said I needed metoprolol and blood thinners. In his words OR I was going to die.( NICE TO HEAR AS I WAS ALREADY SCARED)

 

Ever since my first bout of AF I have had ringing in ONE EAR 24/7 365
Cardiologist says it was unrelated, however it happened at that exact time & I have no reason to believe it isn't related.

I went to ENT, 2 neurologists , Ear Dr, and PCP had every test known including a brain scan all found nothing wrong. BUT, It persists to this day.

 

I had a cardiologist from my previous episode of tachycardia & I went to see him and he told me there was a 5 point system to determine treatment and I was under 1.
He suggested Propanolol ( 10mg) AS NEEDED and an aspirin daily. The aspirin was lowered to ½ and then eliminated due to a new study that it is ineffective in treatment.He said when I am 65 we will re-evaluate treatment.

I do NOT have HBP ( it does spike in an episode ) or any other conditions. I am overweight

I have had a stress test ,EKG'S and a halter monitor a couple times
ALL NORMAL
I take

Magnesium Oxide 600mg.

Garlic

D3

C

Sometimes potassium and B12 and fish oil

& drink A LOT of water
No caffeine

I do have episodes of AF
In the last 2 years I have had 5
I take pill as soon as I feel it and generally convert within a hour & all is well.UNLESS, I have a long bout which lasts a couple maybe 4 hours + and required 2 pills.

THEN THE PROBLEMS BEGIN

For days sometimes weeks I am off.

I have some breakthrough palpitations and I am SO exhausted I can't function.

I am woozy – not light headed more like swaying  on a ship. Not moving helps.In turn I get nervous anxiety, then sometimes palpitations.


I do feel it is related to the ringing in my ear & is triggered with AF But that is of little comfort. They say It takes time to “balance out”

I have tried ( Dr suggested) water-pills and mucinex as well as benadryl sometimes it will help a little Others times not at all.

Does ANYONE else have this kind of experience ? I really need some input!!! I am week 3 after an episode and this one is really difficult.

 

6 Replies
  • Drumz47
    Drumz47, August 2,  2019  11:02pm EST

    Hi Brenda 

    Welcome to the group.

    What we have in common besides living with AFIB is we both are in our 60,s which puts us in the grey area as doctors put it.

    What has helped me to live an incredible active lifestyle with AFIB is my DIET.  I stopped all processed and canned foods, fast food ,sugar drinks , red meat , coffee , salt  for a more plant based diet which has changed my life 360. I play basketball , cycle and excersise while monitoring my heart rate and BP and only take 150mg of Pradaxa , nothing else. I have been told to have surgery because of my age ,” yeah right” but my decision to detoxify myself and consume lots of water and eat right has made the difference. Hope this helps you in some way to life naturally without surgery of a bunch of medication. Seek a second opinion when it comes to surgery and do research on diets with AFIB..  YOU CAN DO IT TOO BRENDAโค๏ธ๐Ÿ‘๐Ÿฟ๐Ÿ™๐Ÿพ  God bless and good luck โœŠ๐Ÿฟ๐Ÿ‘€๐Ÿ˜Ž

  • 58brendaB
    58brendaB, August 3,  2019  7:06am EST

    Thank you  for your advise !
    I don't smoke or drink and I already don't eat meat really. Just on ocasion I have fish or a couple pieces of bacon. I don't drink pop & I have been trying to back off on salt & I too drink LOTS of water!
    I hope the best for you too!

  • Thumper2
    Thumper2, August 3,  2019  7:44am EST

    Hi, Brenda!  My AFib experiences are not identical to yours except that mine began with tachycardia  (I was not under any particular stress).  My cardiologist put me on warfarin, etc., and I had no further symptoms, despite being in AFib.  This went on for at least 8 years, and in the meantime my energy level kept declining.  When I went to a new cardiologist, I discovered my heart valves were deteriorating, to the point that heart surgery seemed a possibility!  Instead, I went to an electrophysiologist (EP), a cardiologist who specializes in the electrical problems of the heart (such as AFib).

    Based on my further experiences, I highly recommend  (1)  that you see an EP (if you're not already), (2) have an ECHO cardiogram to see if your heart valves are being damaged from your AFib, (3) have a sleep test to see if you have sleep apnea, which has a negative effect on AFib, (4) be open to having an ablation by an EP who has done hundreds of successful ones [BTW, an ablation is a procedure, not surgery, and recovery time is minimal].   While diet is important (as Drumz47 has pointed out), it is not always sufficient to deal with AFib. 

    Keep us posted!  Let us know how things are going.  If you can manage it, attend the annual conference on AFib, in Dallas, Texas, August 9-11, this year.  It's called, Get in Rhythm, Stay in Rhythm, and features world-famous cardiologists.

    All the best, Thumper2 (Judy)

  • MellanieSAF
    MellanieSAF, August 3,  2019  11:40am EST

    Judy,

    Thanks for mentioning the Get in Rhythm. Stay in Rhythm. Atrial Fibrillation Patient Conference. (Haven't been here much lately as I'm working around the clock on the conference since it is next weekend.)

    All,

    The conference is perfect for those who are new to afib and those who are very advanced in their afib knowledge. It has been the secret for so many who are now afib free.

    Just a heads-up - registration closes Monday night at midnight as we have to give a final headcount to the hotel first thing Tuesday morning.

    Here are some things that might help:

     - Conference details

     - Detailed agendas  (starts with Friday morning - follow links at bottom of page for remaining agendas)

     - Sponsors you can meet and learn from at the conference

    MyAFibExperience will have some materials and a representative of AHA there. We also have badge ribbons that say "My AFib Experience Community" for those who are members here so you can find each other.

    I look forward to meeting some of you there.  

    Mellanie

  • Devoep
    Devoep, August 4,  2019  3:40am EST

    Hello Brenda, I too am in my sixties but do not think that my A-fib just started, Like you, don't drink or smoke try to take care of my body, vitamins, rest and the normal stress. I was sent straight to the EP and they got right down to the business of the procedure as one mate called it earlier. I had told everyone that I had surgery. They did put me to sleep for this procedure. I was scared like it was a surgery, but call it as you like. My heart rate soared to around 200 as well, did not track how long it stayed. I just think that went the dizziness and shortness of breath were over, it was over. There is a book out there as well as I do also suggest the Aug seminar Get in Rhythm. The book is on Amazon (My Black Heart) Short read but in the perspective of the patient from diagnosing to surgery to recovery with the actual surgery reports, lab readings, test result, and testimony. It should help with some future decisions that you will have to make. Also for anyone else on the forum, for some comparisons of treatments. and to let you know that you are not alone in this journey.

  • Edhammer
    Edhammer, August 5,  2019  7:48am EST

    Hi, 

    i think you will find that Afib has many different manifestations. Heart rates vary, length of time of episodes vary, treatments vary. I truly believe that the variability makes medical approaches a bit of magic mixed with good science.

    That being said, the majority of folks on this forum are empathetic. This condition is tough to explain to a lot of family members. It’s impacts are real to us. For me the uncertainty of when I would have my next episode and how long it would last convinced me to have an ablation AND change my lifestyle. 

    My first episode lasted one night into the next morning. It began a week or so after a heart attack. I was admitted to a critical care unit at 170 or so heart rate. Then in late morning I had a fairly dramatic pause in my heart beat that caused the nurse and doc call for the cart. They indicated that they had never seen a pause like that...I flatlined and then my heart rebooted itself. Pretty scary.

    so welcome to the forum! There will be people with whom who you can share your journey.

    Ed

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