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My ablation is scheduled for Jan. 11. I have "fast" PAF and am "severely symptomatic." Might this make my recovery more difficult? The heart tends to have more symptoms afterwards. So might I tend to have even more trouble with racing, shortness of breath and feeling faint than the average person and take longer to recover?
Just wanting to have some idea how to plan and what to watch for.
depotdoug, December 30, 2020 1:02pm EST
Jan 11th is not long out. I am not familiar with PAF, I should look that up 1st. As far as severely symptomatic I was in that situation Feb 12-14,2020 before my Cardioversion on Valentines day. lots of shortness of breath, heart rate racing and yeh feeling faint in the evenings. Those symptoms stayed on and on even when I went into my EP's office March 30th for AFIB crisis appointment. I was surprised no happy that my newest and greatest EP understood my past AFIB failures and focused on; you need an RF Cath Ablation Doug soon. May 6th,2020 could not have come sooner. That ablation experience was not bad at all, yeh spent overnight in cardiac telemetry for obsserv then home by lunch that day.
238 days of NSR and counting. My EP Dr. V must have ablated in more areas, more than I had expected. I should look back at his, Dr V's post cath ablation procedure notes summary for details and put them here. Oh I should look up "PAF" too.
Let us know how Jan 11th goes Canada.
dsavoie1953, December 30, 2020 4:27pm EST
Go to StopAFIB.org for additonal expert expertise. This will help you mentally. Now... today everyone is going to experience AFIB slightly different. If your Cardologist did a ECG, Stress ECHO, CT Score or Nuclear ECHO and Bloodwork then you should know exactly what is going on with your heart.
Sleep Apnea Study done? I had a succeful RF Ablation in August 2020 and went home that afternoon. I had AFIB for almost 2 years with persistant AFIB starting in March 15, 2020.
I was diagnosis with Sleep Apnea prior to my procedure, and I have used the CPAP device almost nightly, and I feel that I am finally getting rest. Therefore I am of the theory that Sleep Apnea or Insommia play a major part in AFIB.
I went from 17 not breathing to 4 not breathing events per hour. Depletion of O2 is not a good thing for the brain. Not sure how that plays with the eddy currents in the pulmonory eddy current cells which conflicts with the hearts sinus trigger cells.
Canada, December 31, 2020 1:42am EST
Thank you both. By PAF I'm referring to paroxysmol AF - intermittent, not peristent.
I get the StopAFIB.org info regularly - great stuff.
My cardiologist did ECG, ECHO at dx 2 years ago, no bloodwork. My EP hasn't done any of these. Had a sleep study years ago for insomnia, no apnea. I use a pulse oximeter whenI need it and my O2 is good.
depotdoug, December 31, 2020 3:09am EST
CANADA, I should have known PAF meant Paroxaynol AF, duh. Must have been my mind on ADT Lupron hormone Prednisone overload. That acronymn just didnt sink in. Yes, Paroxsynol i had internittent 2018,2019 then Persistent AFIB reared it **** head eary 2020.
Hope youre Jan 11th ablation experience goes.
MellanieSAF, December 31, 2020 9:41am EST
I'm not aware of a reason that fast PAF would cause a more difficult recovery. And if, by difficult recovery, you mean afib, then that is to be expected from an ablation.
Your EP has probably warned you (or soon will) to expect that you may have some "bumps and thumps" (afib) during the 3-month recovery (blanking) period. That is normal. Afib during that time is not the same because it is caused by inflammation of the heart from being worked on. Once the heart has healed, that usually goes away. In fact, there has been some research that those with some afib during the recovery period tend to have more durable results because they tend to have received more aggressive treatment.
Ask your EP what to expect during recovery, and under what conditions you should contact him/her during that time.
I would expect that those who have had persistent afib would have more symptoms afterward than those who have had only paroxysmal afib. That is because persistant afib typically involves "non-PV triggers", meaning that the EP has to go on a search and destroy mission throughout the left atrium rather than simply ablating the pulmonary veins. That would tend to be a longer, more-involved procedure, and more aggressive treatment, and thus there would be more inflammation.
Regarding sleep apnea, if it's been a while since you have been tested, things may have changed and a new sleep study may be in order. You may want to discuss that with your EP.
My sense is that getting restful sleep from treating any sleep apnea would probably help promote faster healing of the inflammation from ablation, and might help in the recovery.
dsavoie1953, December 31, 2020 11:40am EST
You can not fathom HOW critical this information your sharing is to me. I've asked my UT Southwertern Sleep Study PA who is brilliant to get on StopAFIB.org and American Heart Association and educate regarding Sleep Apnea.
I am 100% convinced Sleep Apnea and Insonnia "excite" over time PAF and full blown AFIB. I do not know how but certainly HBP which cause for me the left side of my heart mild to moderate dilation and maybe unclean air contaniments that we take in the lung. I recall an articile I may have read on the web.
Side note. Also, one of the side of effects I had after AFIB procedure was I started to retain water in my legs. EP will provide Rx to reduce that side effect and should go away after 2x days. I also remain on blood thinners for 3 months after the procedure because the risk of blood clots exist after the procedure.
Canada, January 1, 2021 1:22am EST
Thank you, Mellanie. Very helpful! By difficult, I'm thinking a longer recovery and needing to be more careful.
My insomnia is extensive enough that I doubt very much sleep apnea is an issue, but I can ask. Would a smart watch also give some clues? So far the patterns match what I know is going on at night. I do want to say my .75 mg Melatonin is helping. I'm waiting for my 300 mcg order but meanwhile, I'm splitting and resplitting them.
I have a good AF clinic that I can contact anytime. They are good at sending on my emails if/when they think it's appropriate.
Thank you for your added details and assurances. I have every confidence I'm in good hands!
dsavoie1953, January 1, 2021 12:29pm EST
I have been tracking my EKG with Kardia sensor for over 2 years now and keep a great log of progression. EP and Cardiologist like getting the pdf only as a spot check osscasionally prior to a visit. I am waiting for Qardio ECG monitor to be approved by FDA that will fit on your chest.
You mean that your insomina is not extensive ....CORRECT?
Canada, January 2, 2021 1:07pm EST
I am awake so much through the night that I don't have time for sleep apnea! 😊 And whatever sleep I get is so shallow that I would know if I'm short of air. This hasn't changed since sleep study I had 10 or so years ago so I don't know why the results wouldn't still be valid.
But I want to say that as of the past few days and reducing (yes, you read that right) my dose of Melatonin, and sleeping under NO synthetics which overheated me, my sleep quality has improved dramatically. I'm also off the dreadful anti-inflammatory (Dexamethasone) my dentist prescribed for me over Christmas. It was a steroid, stole what little sleep I was getting, and took my heart rate into the 30s.
Good sleeps the past four nights, good timing.
I'll be okay.
depotdoug, January 2, 2021 1:23pm EST
Canada, Well I thought i was going to say the same thing back in Feb 2020 when my paroxsymol AFIB went to Persistent AFIB and kicked me in the ****, so to speak. Meaning "I don't have time for sleep apnea. I didn't even want to look at my CPAP mask or get it close to my face Feb till Oct 2020. I to am on a steroid med, prednisone 5mg 2 tabs daily, which really interferres with my sleep habits. Yeh, I'm so wound up, energized at night it takes me 60 min to clam down, maybe. On a steroid high, never thought I'd say that. But got to take that Prednisone in combo with my other two cancer meds, Abiraterone(Zytiga) and Lupron hormone.
I have never ever tried Melatonin supplements. Worth trying? I am using my new 2020 Phillips Respironics Dreamstation CPAP wonder machine nightly and even for an hour or 90 min power nap too. Looks like I've got the right DreamWisp mask and fit plus a new 2020 technology machine. I keep hearing my med team RN's and doctors tell me use of CPAP machine use, if you love it lowers Blood Pressure. It's working for me.