kstarzmann
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kstarzmann, January 23,  2019  1:13pm EST

Subaortic Stenosis - Konno Procedure

Hello, Anyone have any experience with the konno procdure? My 17 year old son has been through 5 cardiac caths, and 4 open heart surgeries. He has an aortic stent, mechanical valve and now they want to correct is subaortic stenosis with the konno procdure. with that being said he may need an aortic valve replacement and high chance he will end up with a pacepaker. WE currently go to CHOP but going to try to get a second opinion at Texas's Children's Hospital. Anyone have any experience with the follow?? No to mention he was diagnosed with type 1 diabetes after his 4th open heart and we just found out he may have celiac disease.

2 Replies
  • AHAASAKatie
    AHAASAKatie, January 24,  2019  8:35am EST

    I am so sorry that your son and your family are having to experience this.  I do not have experience with this specific condition, but I did want you to know that I am here to support you as much as possible. When will you know more about the celiac's ?  Best Katie

  • DolphinWrite
    DolphinWrite, February 17,  2019  11:13pm EST

    Like the other, I have no experience, but I do know medical science know's a lot more today then ever before.  I hope everything improves.  God bless. 

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