AJ2018
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AJ2018, February 10,  2021  9:06am EST

Hypoplastic Left Heart Syndrome Mommy Here

Hi all! I am a mommy to an almost 3 year old with HLHS. He has had 2 open heart surgeries thus far and we are in preparations for the 3rd. Would love to connect with other parents - to share and create a support network. Also - if anyone is located in Kentucky (near or around Louisville) - would love to connect as well. Thank you for reading and God bless!

3 Replies
  • AHAModerator
    AHAModerator, February 10,  2021  4:44pm EST

    Hello there,

    Thank you for reaching out to the Patient Support Network. We are sorry to hear about your young son's past and upcoming surgeries. We wish him and you all the best going forward.

    We hope you can connect with other parents here on the Support Network and find a sense of community. Please keep us updated on how your son is feeling!

    Best Wishes,

    AHA Moderator

  • AJ2018
    AJ2018, April 2,  2021  8:29am EST

    Good morning all - happy Friday! Update here on our sweet boy AJ. He turns 3 this month - which we are so excited about. Next month he will have the fontan surgery. We know the time is right and we can't wait for him to feel better. We know God has His hands wrapped around all of this!! 

  • AHAModerator
    AHAModerator, April 4,  2021  3:13pm EST

    Hello and thanks for following up with everyone.

    We wish you the best with AJ's surgery and please keep us up to date with his progress!!

    Best Wishes,
    AHA Moderator

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