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Father of newborn boy with aortic stenosis
Hello, I'm a father of new born boy, today he has 2 months and 13 days old, he is 58 cm and 5.5 kg.
We made an Echocardiogram one month ago and it shows as main results Aortic Area was 0.19 cm2 ; speed of blood flow 5 m/s and average gradiant of 65 mm hg.
Yesterday we made a 2nd Echo and we found that Aortic area is 0.3-0.4 cm2 (means increased) ; speed of blood flow is about 5,3 m/s and average gradiant of 53 mm hg.
Is the increase of the Aortic Area a sign that it's better to not do any surgey now and wait to see the evolution os status by time better?
Is the Aortic Surface by itself a reliable input to say that status isn't severe aortic stenosis ?
How much the normal Aortic Area should be for a normal baby similar to my boy (Body Surface of 0,309 m2) ??
Please your help and advice for a worried father. Thank you in advance.
AHAASAKatie, January 22, 2019 8:42am EST
Good morning, my heart goes out to your family as you navigate this time. We really are not in the position to give advice about treatment, which I know is a part of what you are seeking. I can help give you information about Congenital Heart Defects , Aortic Stenosis and this inspirational story for you. Please know that you are not alone in this, we are here to listen and support your family. Best Katie
Lyoakam, January 22, 2019 9:03am EST
Congrats on your baby boy! We definitely understand the stress, confusion and fear you are facing right now. Your questions and concerns are absolutely valid but I would suggest asking your cardiologist directly due to the severity and complexity of his case. You are your son's biggest advocate so do be afraid to get a second or third opinion from other pediatric cardiologists who specialize in Congenital Heart Defects. You may find some relief there. Best of luck and enjoy lots of cuddles with your precious baby! Please keep us updated!
renshiwo, January 22, 2019 1:26pm EST
It's really important to find a pediatric cardiologist that you trust to help you make these kinds of decisions. If you are concerned about the doctors you've been working with, the Pediatric Congenital Heart Association has a list of reccomended questions that can help you feel more comfortable with your care team's skill level or make the decision to look for a new care team. You can find the questions here: http://conqueringchd.org/guided-questions-tool/
There are no hard and fast rules with CHDs. There is a lot of uncertainty. It's wonderful that your baby boy has been able to remain stable for the last two months, and I hope you can find a team that you trust. Surgery sounds scary (and it is scary), but for many kids it is the best option for an improved life. Your son's cardiologist should be able to help you make that decision.
DolphinWrite, February 23, 2019 10:26pm EST
Hello and congratulations on your baby. Wish I knew more, but I know doctors know a lot more today and they have a lot of resources. My prayers to your child, you, and the whole family. God bless.